Migrants and HIV stigma: findings from the Stigma Index Study (UK)

This paper is based on data collected in 2009 for the international Stigma Index Study which measured the experiences of stigma among participants living with HIV in the UK. Data were collected using a self‐completed survey questionnaire and focus group discussions. Quantitative data were analysed using SPSS, while qualitative data were subjected to thematic analysis. The Stigma Index attempts to establish a baseline for documenting the experience of stigma and discrimination by people living with HIV while also acting as an advocacy tool whose power lay in the involvement of people living with HIV in the design of study instruments and data collection. Participants were recruited through collaborations with a broad range of UK HIV support organisations. The ethics protocols used were those described in the Stigma Index guidebook. A total of 867 people living with HIV took part, of whom 276 described themselves as ‘immigrants’. Most of this ‘migrant’ subsample (70%) was women. Nearly, all (91%) identified as heterosexual, while 9% were attracted to someone of the same sex as them. Socioeconomic deprivation was a key theme and they reported other stigmatised chronic conditions in addition to HIV. It is not possible to ascertain from the questionnaire, the migrants’ countries of origin and length of stay in the UK. Control of information about HIV was critically managed, with respect to family and partners. Felt stigma increased anxieties about personal safety, particularly among men. Strategies for safeguarding against the negative impact of stigma included avoiding social gatherings, intimacy, and clinical and HIV social care settings. Most participants were unaware of policies and declarations that protected them as persons living with HIV. Specific recommendations include creating awareness about rights as enshrined in various legal frameworks that protect the right of people living with HIV, which has been reconfigured as a ‘disability’.     

Do Racial/Ethnic Disparities in Quality and Patient Experience within Medicare Plans Generalize across Measures and Racial/Ethnic Groups?

Objective

To examine how similar racial/ethnic disparities in clinical quality (Healthcare Effectiveness Data and Information Set [HEDIS]) and patient experience (Consumer Assessment of Healthcare Providers and Systems [CAHPS]) measures are for different measures within Medicare Advantage (MA) plans.

Data Sources/Study Setting

5.7 million/492,495 MA beneficiaries with 2008–2009 HEDIS/CAHPS data.

Study Design

Binomial (HEDIS) and linear (CAHPS) hierarchical mixed models generated contract estimates for HEDIS/CAHPS measures for Hispanics, blacks, Asian‐Pacific Islanders, and whites. We examine the correlation of within‐plan disparities for HEDIS and CAHPS measures across measures.

Principal Findings

Plans with disparities for a given minority group (vs. whites) for a particular measure have a moderate tendency for similar disparities for other measures of the same type (mean r = 0.51/.21 and 53/34 percent positive and statistically significant for CAHPS/HEDIS). This pattern holds to a lesser extent for correlations of CAHPS disparities and HEDIS disparities (mean r = 0.05/0.14/0.23 and 4.4/5.6/4.4 percent) positive and statistically significant for blacks/Hispanics/API.

Conclusions

Similarities in CAHPS and HEDIS disparities across measures might reflect common structural factors, such as language services or provider incentives, affecting several measures simultaneously. Health plan structural changes might reduce disparities across multiple measures.     

The relevance of Xenophon’s Anabasis and Plato’s Meno to nursing

The current situation in which the humanities are disparaged affects all university disciplines, including nursing, in whose historical evolution the humanities have always been present in one form or another. Looking beyond this disrepute, this study proposes that nursing renew its attention to classical philosophy. Specifically, it invites a close reading of Xenophon's Anabasis and Plato's Meno, to get three related goals: to show how the use of ancient texts are very valuable tools for the philosophical initiation of nursing students and can help them reflect on their choice of nursing as a practical activity; to reflect on the problem of virtue and the nature of the good life; and to show how the interaction with ancient texts allows students to reflect on questions and issues of life, theirs and others, that are not open to investigation through a purely scientific method. Consequently, both Anabasis and Meno readings strengthen the intellectual relationship between philosophy and nursing, enabling the latter to delve deeper into the key questions of its own thought as a discipline.     

‘Betwixt and between’; liminality in recovery stories from people with myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS)

This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both the experience of illness and the process of recovery from ME/CFS. The liminality experienced during illness was akin to that described by Turner with a degree of communitas among sufferers. As recovery progressed, participants stressed the percentage to which they had improved, and compared themselves with peers and themselves prior to the illness. Recovery did not mean transition into a post‐liminal phase, but involved a new liminality, characterised by straddling boundaries between illness and wellness. Participants continued strategies such as rest, pacing and meditation. This second liminal state included difficulty in communicating the experience convincingly, and estrangement from the ME/CFS community. Thus, recoverees moved from the liminality of illness to a second, and less legible state of sustained liminality in recovery, described as having one foot in the ill world, one foot in the well world. This suggests that more needs to be understood about the recovery experience to assist those making the transition toward wellness.     

Baby‐led weaning: Where are we now?

When baby‐led weaning (BLW) first emerged as a concept, in the early 2000s, it was seen as a new and different approach to complementary feeding, a challenge to the accepted way of doing things – which indeed it was. Since then, there has been a gradual reassessment of the perceived wisdom that guides how complementary feeding is approached, with the result that many of the features of BLW are now reflected in mainstream thinking. The publication of the report of the UK Scientific Advisory Committee on Nutrition, Feeding in the First Year of Life, which summarises and evaluates the existing evidence base for infant feeding as a benchmark for UK guidelines, provides a useful opportunity to look at how well the baby‐led approach fits with current evidence and which aspects of the introduction of solid foods remain to be investigated.     

The Effect of Response Scale,Administration Mode,and Format on Responses to the CAHPS Clinician and Group Survey

Objective

To examine how different response scales, methods of survey administration, and survey format affect responses to the CAHPS (Consumer Assessment of Healthcare Providers and Systems) Clinician and Group (CG-CAHPS) survey.

Study Design

A total of 6,500 patients from a university health center were randomly assigned to receive the following: standard 12-page mail surveys using 4-category or 6-category response scales (on CG-CAHPS composite items), telephone surveys using 4-category or 6-category response scales, or four-page mail surveys.

Principal Findings

A total of 3,538 patients completed surveys. Composite score means and provider-level reliabilities did not differ between respondents receiving 4-category or 6-category response scale surveys or between 12-page and four-page mail surveys. Telephone respondents gave more positive responses than mail respondents.

Conclusions

We recommend using 4-category response scales and the four-page mail CG-CAHPS survey.     

Vitamin D: Sunshine vs. diet vs. pills

One in five people in the UK is known to have a low serum vitamin D level (25‐hydroxy vitamin D below 25 nmol/l) according to the National Diet and Nutrition Survey. The Summer of 2015 saw publication of a draft report from the government's Scientific Advisory Committee on Nutrition (SACN), which proposes introduction of dietary reference values (DRVs) for all age groups (not just those considered as vulnerable). The health outcome identified as the basis for setting DRVs for vitamin D was musculoskeletal health (based on rickets, osteomalacia, falls, risk of falling and muscle strength). The data were not sufficient to establish a distribution of serum 25(OH)D concentrations or a clear threshold serum 25(OH)D concentration to support musculoskeletal health outcomes, but the evidence overall suggests that the risk of poor musculoskeletal health is increased at serum 25(OH)D concentrations below 25 nmol/l. Therefore, SACN selected a serum 25(OH)D concentration of 25 nmol/l, on a precautionary basis, as the target concentration to protect all individuals from poor musculoskeletal health. This concentration was considered to be a ‘population protective level’ (i.e. the concentration that 97.5% of individuals in the UK should be above, throughout the year, in order to protect musculoskeletal health). After establishing the health outcomes linked with low vitamin D status, the next step in estimating DRVs for vitamin D was translation of the serum 25(OH)D concentration of 25 nmol/l into a dietary intake value that represents the reference nutrient intake (RNI) for vitamin D [i.e. the average daily vitamin D intake that would be sufficient to maintain a serum 25(OH)D concentration of at least 25 nmol/l in 97.5% of individuals in the UK]. The average vitamin D intake refers to the mean or average intake over the long‐term and takes account of day‐to‐day variations in vitamin D intake. It was not possible to quantify the sunlight exposure required in the summer months to maintain a winter serum 25(OH)D concentration of at least 25 nmol/l because of the number of factors that affect endogenous vitamin D synthesis, storage and utilisation. Instead, use was made of a series of three randomised controlled trials, conducted in the winter months, to estimate directly the amount of vitamin D required daily to achieve a serum threshold of 25 nmol/l throughout the year. The RNI proposed by SACN for all people aged 4 and above is 10 μg/day. For younger children, a Safe Intake of 8.5–10 μg/day (depending on age) is proposed. These recommendations bring alignment with many other countries of the world. As dietary intakes from food are typically well below the 10 μg/day proposed by SACN for most age groups, media reports speculated on how this advice might be achieved in practice.     

Dialectics of gender and health: the case of HIV serodiscordance

The relationship between gender and health is a deeply interdependent one. Yet research in this area has focused primarily on how gender relations determine health behaviour and health outcomes. This article advocates a more holistic approach that conceptualises gender and health as fully intertwined and mutually constitutive. This interplay is explored through the case of HIV serodiscordance in which one person in a relationship is HIV positive and the other HIV negative. Drawing on in‐depth research with discordant couples in urban Uganda, this study indicates that living with discordance can both reinforce and challenge normative gender power dynamics in relationships. This study, therefore, illustrates how significant health problems can influence gender relations. As such, it reveals the dialectical relationship between gender and health and also provides important insights for HIV prevention in the new era of antiretroviral treatment as prevention.     

Accelerating Improvement and Narrowing Gaps: Trends in Patients' Experiences with Hospital Care Reflected in HCAHPS Public Reporting

Objective

Measure HCAHPS improvement in hospitals participating in the second and fifth years of HCAHPS public reporting; determine whether change is greater for some hospital types.

Data

Surveys from 4,822,960 adult inpatients discharged July 2007–June 2008 or July 2010–June 2011 from 3,541 U.S. hospitals.

Study Design

Linear mixed‐effect regression models with fixed effects for time, patient mix, and hospital characteristics (bedsize, ownership, Census division, teaching status, Critical Access status); random effects for hospitals and hospital‐time interactions; fixed‐effect interactions of hospital characteristics and patient characteristics (gender, health, education) with time predicted HCAHPS measures correcting for regression‐to‐the‐mean biases.

Data Collection Methods

National probability sample of adult inpatients in any of four approved survey modes.

Principal Findings

HCAHPS scores increased by 2.8 percentage points from 2008 to 2011 in the most positive response category. Among the middle 95 percent of hospitals, changes ranged from a 5.1 percent decrease to a 10.2 percent gain overall. The greatest improvement was in for‐profit and larger (200 or more beds) hospitals.

Conclusions

Five years after HCAHPS public reporting began, meaningful improvement of patients'' hospital care experiences continues, especially among initially low‐scoring hospitals, reducing some gaps among hospitals.     

Measurement Error in Public Health Insurance Reporting in the American Community Survey: Evidence from Record Linkage

Objective

Examine measurement error to public health insurance in the American Community Survey (ACS).

Data Sources/Study Setting

The ACS and the Medicaid Statistical Information System (MSIS).

Study Design

We tabulated the two data sources separately and then merged the data and examined health insurance reports among ACS cases known to be enrolled in Medicaid or expansion Children''s Health Insurance Program (CHIP) benefits.

Data Collection/Extraction Methods

The two data sources were merged using protected identification keys. ACS respondents were considered enrolled if they had full benefit Medicaid or expansion CHIP coverage on the date of interview.

Principal Findings

On an aggregated basis, the ACS overcounts the MSIS. After merging the data, we estimate a false‐negative rate in the 2009 ACS of 21.6 percent. The false‐negative rate varies across states, demographic groups, and year. Of known Medicaid and expansion CHIP enrollees, 12.5 percent were coded to some other coverage and 9.1 percent were coded as uninsured.

Conclusions

The false‐negative rate in the ACS is on par with other federal surveys. However, unlike other surveys, the ACS overcounts the MSIS on an aggregated basis. Future work is needed to disentangle the causes of the ACS overcount.