Characteristics of international websites with information on developmental disabilities

The Internet often serves as a primary resource for individuals seeking health-related information, and a large and growing number of websites contain information related to developmental disabilities. This paper presents the results of an international evaluation of the characteristics and content of the top 10 ranked results (i.e., not including sponsored results – pay-per-click) returned when one of five terms related to developmental disabilities (i.e., ADHD, autism, down syndrome, learning disability, intellectual disability) was entered into one of six country specific Google online search engines (i.e., Australia (https://www.google.com.au), Canada (https://www.google.ca), Ireland (https://www.google.ie), New Zealand (https://www.google.co.nz), the United Kingdom (https://www.google.co.uk), and the United States (https://www.google.com)) on October 22, 2013. Collectively, we found that international consumers of websites related to developmental disabilities will encounter different websites with differing content and terminology, and should be critical consumers to ensure they locate the information they are seeking.     

国内肿瘤学网络咨询现状调查

非随机选择10家有代表性的肿瘤学咨询网站为研究对象,对国内肿瘤学网络咨询现状进行调查,结果显示国内肿瘤学咨询网站主要有专业、个人、商业、社区4种类型.指出卫生行政管理部门应制定行业规范,加强行政管理,鼓励专业机构选择合适的生存方式介入肿瘤学网络咨询业.     

居民对公立医院网站利用状况研究

对上海市某区3个社区的1604名居民进行医院网站利用状况的问卷调查,结果显示,社区居民未充分利用医院网站,这可能与他们缺乏网络检索技术、查询时间等有关,且社区居民年龄、受教育程度与收入状况也影响他们对医院网站信息的利用,建议医院改善网站建设以适应不同社区居民的不同需求。     

Genetic resources for the neonatologist

Diagnosing genetic disorders and counselling the parents of babies with possible genetic conditions takes up a significant proportion of a neonatologist's clinical time. This article provides a guide to establishing genetic tools and a reference library on a neonatal unit. The availability of good resources may heighten staff awareness of genetic aetiologies in babies with subtle features, and enable possible diagnoses to be considered and a genetics consultation sought. In addition, when a diagnosis is made, information is then readily available to guide the neonatologist in his or her consultations with parents. It is not intended that the tools outlined here should be a replacement for the genetics consultation; their role is merely to facilitate the interaction of neonatologists with geneticists, to the benefit of the parents and the baby.     

网络医学信息资源的免费获取

归纳并分析了免费获取网络医学信息的方式,探讨了医学网络资源的一般获取技巧,并认为医学专业学术网站、医学期刊网站、医学单位或医学专业人员的学术性博客和个人网页等是获取医学专业信息的重要途径。