Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V |
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| Authors: | Cees DM Ruijs Bregje D Onwuteaka-Philipsen Gerrit van der Wal Ad JFM Kerkhof |
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| Affiliation: | (1) Primary Care Center De Greev, Utrecht, the Netherlands;(2) Department of Public and Occupational Health, EMGO Institute for Health and Care Research, Expertise Center for Palliative Care, VU University Medical Center, Amsterdam, the Netherlands;(3) Department of Clinical Psychology, EMGO + Institute for Health and Care Research, VU University, Amsterdam, the Netherlands |
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| Abstract: | Background Unbearable suffering is an important issue in end-of-life decisions. However, there has been no systematic, prospective, patient-oriented research which has focused on unbearable suffering, nor is there a suitable measurement instrument. This article describes the methodological development of a quantitative instrument to measure the nature and intensity of unbearable suffering, practical aspects of its use in end-stage cancer patients in general practice, and studies content validity and psychometric properties. |
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