Advancing Research on Care Needs and Supportive Approaches for Persons With Dementia: Recommendations and Rationale |
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| Authors: | Ann Kolanowski Richard H. Fortinsky Margaret Calkins Davangere P. Devanand Elizabeth Gould Tamar Heller Nancy A. Hodgson Helen C. Kales Jeffrey Kaye Constantine Lyketsos Barbara Resnick Melanie Schicker Sheryl Zimmerman |
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| Affiliation: | 1. Pennsylvania State University, University Park, PA;2. University of Connecticut, Farmington, CT;3. IDEAS Institute, Moreland Hills, OH;4. Columbia University Medical Center, New York, NY;5. RTI International, Chicago, IL;6. University of Illinois, Chicago, IL;7. University of Pennsylvania, Philadelphia, PA;8. University of Michigan, Ann Arbor, MI;9. Oregon Health & Science University, Portland, OR;10. Johns Hopkins University, Baltimore, MD;11. University of Maryland, Baltimore, MD;12. Persons Living with Dementia Stakeholder Group, Alzheimer''s Association, Chicago, Ill;13. University of North Carolina, Chapel Hill, NC |
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| Abstract: | The first National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers was held on October 16-17, 2017, at the National Institutes of Health. In this paper, participants from the Summit Session on Research on Care Needs and Supportive Approaches for Persons with Dementia summarize the state of the science, identify gaps in knowledge, and offer recommendations to improve science and practice in long-term care. Recommendations cover 4 areas focused on persons living with dementia: (1) symptoms (behavioral and psychological symptoms of dementia, function, cognition, and sleep); (2) dementia care settings (physical and social environments, home, and residential care); (3) living with dementia (living well with dementia, living alone with dementia, and living with dementia and intellectual and developmental disabilities); and (4) technology as a cross-cutting theme. The participants identify 10 of the most pressing research issues based on the findings from their collective papers. Final Summit recommendations included those presented by session participants and will be used to advise federal agencies and other organizations that fund research. |
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| Keywords: | National Dementia Care Summit research recommendations dementia |
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