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When children with profound multiple disabilities are hospitalized: A cross‐sectional survey of parental burden of care,quality of life of parents and their hospitalized children,and satisfaction with family‐centered care |
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| Authors: | Brigitte Seliner Bea Latal Rebecca Spirig |
| Affiliation: | 1. APN Rehabilitation, University Children's Hospital, Zurich, Switzerland;2. Professor Physician, and Head of Developmental Pediatrics, University Children's Hospital, Zurich, Switzerland;3. Professor and Executive Director of Nursing and Allied Health Care Professions, University Hospital, Zurich, Switzerland |
| Abstract: | |
| Keywords: | Burden of care cross‐sectional study pediatric nursing profound intellectual and multiple disabilities (PIMD) quality of life satisfaction with family‐centered care |