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Access to Cancer Screening for Women with Mobility Disabilities
Authors:Jan Angus  Lisa Seto  Nancy Barry  Naomi Cechetto  Samira Chandani  Julie Devaney  Sharmini Fernando  Linda Muraca  Fran Odette
Institution:(1) Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, 155 College Street, Suite 130, Toronto, ON, M5T 1P8, Canada;(2) Centre for Independent Living Toronto (CILT) Inc., Toronto, Canada;(3) Mount Sinai Hospital Auxiliary Breast Health & Taking Charge Programs, Marvelle Koffler Breast Centre, Mount Sinai Hospital, Toronto, Canada;(4) Regent Park Community Health Centre, Toronto, Canada;(5) Women with Disabilities and Deaf Women’s Program, Springtide Resources, Toronto, Canada;(6) My Leaky Body, Health Education and Performances, Toronto, Canada;(7) Ismaili Cancer Support Network, Toronto, Canada
Abstract:Women with mobility disabilities are less likely to access cancer screening, even when they have a primary care provider. The Gateways to Cancer Screening project was initiated to document the challenges for women with disabilities in their access and experiences of screening for breast, cervical and colorectal cancer. The study followed the tenets of participatory action research. Five peer-led focus groups were held with 24 women with mobility disabilities. Study participants identified multiple and interacting institutional barriers to cancer screening. Their discussions highlighted the complex work of (1) arranging and attending health-related appointments, (2) confronting normative assumptions about women's bodies and (3) securing reliable health care and information. These overlapping, mutually reinforcing issues interact to shape how women with disabilities access and experience cancer screening. We explore implications for redesign of cancer screening services and education of health providers, providing specific recommendations suggested by our participants and the findings.
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