Parental Experience of Home Adaptation for Children with Motor Disabilities |
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| Authors: | Laurence Roy Jacqueline Rousseau Héloïse Allard Debbie Feldman Annette Majnemer |
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| Affiliation: | 1. School of Rehabilitation, Université de Montréal, Québec, Canadalaurence.roy@umontreal.ca;3. School of Rehabilitation, University of Montreal, Montreal, QC, Canada;4. Institut universitaire de gériatrie de Montréal, 4565 Queen Mary Road, Montreal, QC, Canada;5. Centre de réadaptation Marie-Enfant, 5200 Bélanger Est, Montréal, QC, Canada;6. Groupe de recherche interdisciplinaire en santé, 2375, Ch. C?te Ste-Catherine, Montréal, QC, Canada;7. McGill University, Montreal, QC, Canada;8. Montreal Children's Hospital, 2300 Tupper St., Montreal, QC, Canada |
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| Abstract: | Home adaptation is essential in increasing independence of children with disabilities and reducing the burden of care for parents. Physical and occupational therapists involved in home adaptations are faced with various challenges in meeting the needs and expectations of parents. This study aimed at exploring the experience of parents throughout the home adaptation process. We conducted an exploratory qualitative study, whereby we interviewed a sample of 11 parents of children with motor disabilities, using focus groups and individual interviews. Dominant themes that emerged were financial and organizational constraints, child's independence/self-esteem, respect of temporal aspects, safety, respect for parent's roles, need for information, and appearance of the home. Parents wish physical and occupational therapists to take on roles that extend beyond provision of home adaptation, such as those of consultants and advocates. |
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| Keywords: | Home adaptation parents of children with physical disabilities occupational therapy physical therapy rehabilitation person–environment relationship Model of Competence |
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