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Recommendations to organize care for adults with congenital heart disease in the Czech Republic
Affiliation:1. Department of Internal Cardiology Medicine, University Hospital Brno and Faculty of Medicine, Masaryk University Brno, Czech Republic;2. Department of Cardiovascular Surgery, Motol University Hospital and 2nd Faculty of Medicine, Charles University Prague, Czech Republic;3. Department of Cardiovascular Surgery, Na Homolce Hospital, Prague, Czech Republic;4. Centre for Cardiovascular Surgery and Transplantation Brno, Czech Republic;5. Children''s Heart Centre, Motol University Hospital and 2nd Faculty of Medicine, Charles University Prague, Czech Republic;6. Department of Paediatric Cardiology, University Hospital Brno and Faculty of Medicine, Masaryk University Brno, Czech Republic;7. Fetal Medicine Centre Brno, Czech Republic;8. Department of Internal Medicine I – Cardiology, Olomouc University Hospital and Faculty of Medicine, Palacky University Olomouc, Czech Republic;9. Institute of Clinical and Experimental Medicine, Prague, Czech Republic
Abstract:This paper was formed by the Expert committee for congenital heart disease (CHD) in adults – a division of Czech Society of Cardiology (ČKS). It was designed as an appendix to National cardiovascular programme ČKS created in 2013 and was based on Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of ‘Grown-up Congenital Heart Disease’ in Europe: a position paper of the Working Group on Grown-up Congenital Heart Disease of the European Society of Cardiology created in 2014 [1].Aims of this paper are: To optimize medical care in all its aspects for adults with CHD in the Czech Republic, to facilitate easy transition between paediatric and adult medical care, to enable research in the field in order to create evidence based care, to support training of regional cardiologists and other specialists who are involved in monitoring adult patients with CHD, to help with communication with national institutions, to provide information for other medical workers and patients, to consolidate resources.
Keywords:adult congenital heart disease  ACHD  grown-up congenital heart disease  GUCH  organization of care  specialized centre
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