Opinions of families,staff, and patients about family participation in care in intensive care units |
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| Authors: | Maité Garrouste-Orgeas Vincent Willems Jean-François Timsit Frédérique Diaw Sandie Brochon Aurelien Vesin François Philippart Alexis Tabah Isaline Coquet Cédric Bruel Marie-Luce Moulard Jean Carlet Benoit Misset |
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| Affiliation: | 1. Vanderbilt University School of Nursing, Nashville, TN, USA;2. Department of Critical Care Medicine, Queen''s University, Kingston, ON, Canada;3. Royal Brisbane and Womens Hospital, The University of Queensland, Australia;4. Department of Anesthesiology and Critical Care Medicine, Hadassah Hebrew University Medical Center, Jerusalem, Israel;5. Department of Pulmonary, Critical Care and Sleep Medicine, Alpert Medical School at Brown University, Providence, RI, USA;6. Department of Medicine, Divisions of Critical Care and Pulmonology, Charlotte Maxeke Johannesburg Academic Hospital and Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa;7. Department of Pulmonary and Critical Care Medicine, Asan Medical Center, University of Ulsan College of Medicine, Republic of Korea;8. University of California San Diego Health, San Diego, CA, USA;9. Critical Care Department, Sheikh Khalifa Medical City, Abu Dhabi, United Arab Emirates;10. Cambia Palliative Care Center of Excellence, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, Seattle, WA, USA;1. National Center for Posttraumatic Stress Disorder and VA Palo Alto Health Care System, Department of Veterans Affairs, 795 Willow Road (334/NC-PTSD), Menlo Park, CA 94025, USA;2. Department of Surgery, Stanford University School of Medicine, 300 Pasteur Dr., A160 MC 5313, Stanford, CA 94305, USA;3. Palo Alto University, 1791 Arastradero Road, Palo Alto, CA 94304, USA;1. Neuroscience Intensive Care Unit, Yale-New Haven Hospital, New Haven, CT 06510, USA;2. Yale School of Medicine (YSM), New Haven, CT 06510, USA;3. Critical Care Center, Massachusetts General Hospital (MGH), Boston, MA 02114, USA;4. Medical Intensive Care Unit, MGH, Boston, MA 02114, USA;5. Harvard Medical School, Boston, MA 02115, USA;6. Division of Neurocritical Care and Emergency Neurology, MGH, Boston, MA 02114, USA |
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| Abstract: | PurposeThe aims of the study were to assess opinions of caregivers, families, and patients about involvement of families in the care of intensive care unit (ICU) patients; to evaluate the prevalence of symptoms of anxiety and depression in family members; and to measure family satisfaction with care.Materials and MethodsBetween days 3 and 5, perceptions by families and ICU staff of family involvement in care were collected prospectively at a single center. Family members completed the Hospital Anxiety and Depression Scale (HADS) and a satisfaction scale (Critical Care Family Needs Inventory). Nurses recorded care provided spontaneously by families. Characteristics of patient-relative pairs (n = 101) and ICU staff (n = 45) were collected. Patients described their perceptions of family participation in care during a telephone interview, 206 ± 147 days after hospital discharge.ResultsThe numbers of patient-relative pairs for whom ICU staff reported favorable perceptions were 101 (100%) of 101 for physicians, 91 (90%) for nurses, and 95 (94%) for nursing assistants. Only 4 (3.9%) of 101 families refused participation in care. Only 14 (13.8%) of 101 families provided care spontaneously. The HADS score showed symptoms of anxiety in 58 (58.5%) of 99 and of depression in 26 (26.2%) of 99 family members. The satisfaction score was high (11.0 ± 1.25). Among patients, 34 (77.2%) of 44 had a favorable perception of family participation in care.ConclusionsFamilies and ICU staff were very supportive of family participation in care. Most patients were also favorable to care by family members. |
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