Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial |
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| Authors: | Maarten Cuypers Romy E.D. Lamers Paul J.M. Kil Lonneke V. van de Poll-Franse Marieke de Vries |
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| Affiliation: | 1. Department of Social Psychology, Tilburg University, Tilburg, The Netherlands;2. Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands;3. Department of Urology, Elisabeth-Tweesteden Hospital, Tilburg, The Netherlands;4. CoRPS – Center of Research on Psychology in Somatic Diseases, Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands;5. Department of Research, Comprehensive Cancer Organisation Netherlands, Eindhoven, The Netherlands;6. Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands;7. Institute for Computing and Information Sciences (iCIS) & Social and Cultural Psychology, Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands |
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| Abstract: | ObjectiveTo investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up.MethodsWithin a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n?=?382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate.ResultsAfter 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction.ConclusionNo long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.Practice implicationsDuring PCa treatment counseling, healthcare providers should be aware of anxious and depressive symptoms. |
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| Keywords: | Prostate cancer Decision aid Shared decision making Treatment Regret Satisfaction Patient-reported outcomes |
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