Multivariate models of subjective caregiver burden in dementia: A systematic review |
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| Institution: | 1. Psychiatric Skilled Nursing Home ‘DrieMaasStede’, Argos Zorggroep, Schiedam/VU Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research VU University Amsterdam/VU University Medical Centre, Amsterdam, The Netherlands;2. Stichting Wetenschap Balans (Foundation for Scientific Research Geriatric Health Care), Rotterdam/VU Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research VU University Amsterdam/VU University Medical Centre, Amsterdam, The Netherlands;3. Psychiatric Skilled Nursing Home ‘DrieMaasStede’, Argos Zorggroep, Schiedam, The Netherlands;4. Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research VU University Amsterdam/VU University Medical Centre, Amsterdam/GGZ Ingeest, Amsterdam, The Netherlands;1. Laboratory SCALab, UMR CNRS 9193, University of Lille, Domaine Universitaire du Pont de Bois, BP 149, 59653 Villeneuve d''Ascq, France;2. Department of Neurology, Memory Research and Resources Clinic at the University Hospital of Lille, University of Lille, CHRU, 59037 Lille, France;3. Institut universitaire de gériatrie de Montréal, 4565 Chemin Queen Mary, Montréal, Qc H3W1W5, Canada;4. Roubaix Hospital, Addiction Service, Roubaix, France;1. Personal Social Services Research Unit: Faculty of Biology, Medicine, and Health, Division of Population Health, University of Manchester, Manchester, UK;2. School of Health Sciences, University of East Anglia, Norwich, UK;3. Department of Health Services Research, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands;4. Department of Health Sciences, Division of Nursing, Lund University, Lund, Sweden;5. Department of Nursing Science, University of Turku, and Turku University Hospital, Turku, Finland;6. Department of Internal Medicine, Faculty of Medicine, University of Tartu, Tartu, Estonia;7. Geriatrics Department, Gerontôpole, Toulouse University Hospital, INSERM UMR 1027, Toulouse, France;8. School of Nursing Science, Faculty of Health, University of Witten/Herdecke, Witten, and Institute for Health and Nursing Science, Medical Faculty, Martin Luther University, Halle-Wittenberg, Germany;9. Nursing Department, Hospital Clinic of Barcelona, Barcelona, Spain;1. Departments of General Practice & Elderly Care Medicine, VU University Medical Centre, EMGO+ Institute for Health and Health Care Research, Amsterdam, The Netherlands;2. Departments of Clinical Psychology and Epidemiology & Biostatistics, VU University Medical Centre, EMGO+ Institute for Health and Health Care Research, Amsterdam, The Netherlands;3. Department of Neurology, VUmc Alzheimer Center, Amsterdam, The Netherlands;4. Trimbos Institute (Netherlands Institute for Mental Health and Addiction), Utrecht, The Netherlands;1. Yong Loo Lin School of Medicine, National University of Singapore, Singapore;2. Department of Psychological Medicine, National University Health System, Singapore;1. Faculty of Health and Medical Science, University of Surrey, Guildford, Surrey, United Kingdom;2. Section of Clinical Psychology, Amsterdam Public Health research institute, Vrije Universiteit Amsterdam, the Netherlands;3. Department of Psychiatry and Psychotherapy, Klinikum rechts der Isar, Technische Universität München, Munich, Germany;4. Saint Louis University School of Social Work, St. Louis, MO;5. Old age Psychiatry Service, Geneva University Hospital & WHO Collaborating Center for mental health research, University of Geneva, Geneva, Switzerland;6. World Health Organization, Geneva, Switzerland |
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| Abstract: | BackgroundBurden in dementia caregivers is a complex and multidimensional construct. Several models of burden and other representations of burden like depression or mental health are described in literature. To clarify the state of science, we systematically reviewed complex models that include both patient and caregiver determinants of caregiver burden.ObjectiveA review of determinant models of caregiver burden.DesignSystematic review.Data sourcesElectronic databases PubMed, PsycInfo and EMbase were searched in December 2013.Study selection and analysisResearch studies with quantitative outcome measures of caregiver burden or burden-related concepts, including both patient and caregiver functional characteristics as determinants. We categorized the determinant variables in the models and calculated the percentages of proven determinants within each category.ResultsWe found 32 studies with burden models and 24 depression and mental health models. Patient behavioral problems, caregiver coping and personality traits and competence are most consistent determinants of caregiver burden, depression and mental health. Behavioral problems are more significant than cognitive disorders or lack of self-care. Of all measured caregiver personality traits, neuroticism has the strongest impact on caregiver burden. Regarding caregiver competences, feeling competent or enjoying higher self-efficacy in general diminish caregiver burden and promote caregiver mental health. |
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| Keywords: | Review Model Dementia Caregiver Burden |
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