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Dementia Caregivers' Most Pressing Concerns
Authors:Linda O. Nichols PhD  Jennifer Martindale-Adams EdD  William Alex Greene PhD  Robert Burns MD  Marshall J. Graney PhD  Allan Lummus PhD
Affiliation:1. Veterans Affairs Medical Center and University of Tennessee Health Sciences Center , Memphis, Tennessee, USA linda.nichols@va.gov;3. University of Tennessee Health Sciences Center , Memphis, Tennessee, USA;4. Geriatrics Group of Memphis and University of Tennessee Health Sciences Center , Memphis, Tennessee, USA
Abstract:This primary-care-based study was designed to determine needs as identified by the informal caregiver. A total of 165 caregivers identified selected topics of concern. Depressed caregivers requested more information about depression, adult day care, grief, caregiver feelings, and relaxation. Caregivers of individuals with mild dementia requested more information on confusion, driving, patient depression, shadowing, telling the patient and others, grief, and depression. Behavioral (activities, combativeness, communication, confusion) and stress (healthy lifestyle, grief, relaxation, depression) needs were similar across race, gender, and relationship. However, the clinical characteristics of caregivers (depression) and care recipients (cognitive impairment severity) affected behavioral and stress and coping needs.
Keywords:primary care  Alzheimer's disease  race  needs assessment
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