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Health-related quality of life of children with Developmental Coordination Disorder
Institution:1. Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada;2. Graduate Programs in Rehabilitation Science, University of British Columbia, Vancouver, Canada;3. BC Children’s Hospital Research Institute, Vancouver, Canada;4. Department of Pediatrics, University of British Columbia, Vancouver, Canada;5. Sunny Hill Health Centre for Children, Vancouver, Canada;6. CanChild Centre for Childhood Disability Research, Hamilton, Canada;1. Department of Kinesiology, McMaster University, Hamilton, ON, Canada;2. Department of Family Medicine, McMaster University, Hamilton, ON, Canada;3. Offord Centre for Child Studies, McMaster University, Hamilton, ON, Canada;4. CanChild Centre for Childhood Disability Research, Canada;5. School of Rehabilitation Sciences, McMaster University, Hamilton, ON, Canada;6. Departments of Psychiatry and Behavioral Neurosciences and Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada;1. Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada;2. Neonatal Follow-Up Program, British Columbia’s Women’s Hospital, Vancouver, Canada;3. BC Children’s Hospital Research Institute, Vancouver, Canada;4. Department of Pediatrics, University of British Columbia, Vancouver, Canada;5. Sunny Hill Health Centre for Children, Vancouver, Canada;1. Occupational Therapy Program, School of Rehabilitation, Faculty of Medicine and Health Science, Université de Sherbrooke, 3001 12th Avenue North, Sherbrooke, Quebec J1H 5N4, Canada;2. Haute école de travail social et de la santé – EESP – Lausanne, Ch. des Abeilles 14, 1010 Lausanne, Switzerland;3. Faculty of Education, Psychoeducation Program, Université de Sherbrooke, 2500 boul. Université, Sherbrooke, Québec, J1K 2R1, Canada;1. University of Groningen, University Medical Center Groningen, Beatrix Children''s Hospital, Groningen, The Netherlands;2. Department of Health Sciences, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands;3. Faculty of Kinesiology and Rehabilitation Sciences, KU Leuven, Belgium;4. Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Old Main Building, Groote Schuur Hospital, Cape Town, South Africa
Abstract:BackgroundAlthough Developmental Coordination Disorder (DCD) is primarily a motor disorder, it can also impact emotional and psychosocial functioning of children with this condition. Evidence suggests that children with DCD experience lower quality of life than their peers, but few studies have explicitly examined the health-related quality of life (HRQOL) of these children.AimsTo: (1) describe HRQOL of children with DCD compared to typically-developing children; (2) compare HRQOL from the perspectives of children with DCD and their parents; and (3) explore predictors of HRQOL for children with DCD.MethodsData from the KidScreen-52 and Strength and Difficulties Questionnaire were collected from 50 children with DCD Mean(SD) age: 9.8 (1.2) years] and their parents and compared to normative data.ResultsChildren with DCD and their parents report significantly lower HRQOL compared to published norms. Caregivers have a significantly lower perception of their child’s HRQOL than their child’s self-report in many domains. Parents of children with DCD report that their children experience significantly more emotional and behavioral disturbances compared to norms. Poor motor function and attentional difficulties predict HRQOL.Conclusion and implicationsDCD appears to contribute to lower perceived HRQOL. Findings inform therapeutic targets for children with DCD, beyond motor skill intervention.
Keywords:Developmental Coordination Disorder (DCD)  Quality of life  Health-related quality of life  Children (8–12)  Motor skills disorder  Psychosocial functioning  Activities of daily living
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