上海市中心城区居家临终患者生活状况及护理指导需求调查

选择2011年1月至2013年12月本社区诊断明确的恶性肿瘤患者、诊断明确的慢性病晚期生活失能患者及照护者各150例,采用自制定量问卷进行面对面调查.112例（74.7％）的照护者认为相对医院而言,患者本人更希望在家里接受护理;95例（63.3％）的照护者护理技术认知水平欠缺,照护技术能力较弱;97例（64.7％）照护者表示希望得到临终患者护理技术指导.说明居家临终关怀可以满足患者的身心需求,但需要社区医疗服务和资源的支持,借助居委会平台集中培训,提供居家照护的技能指导或疾病管理的相关信息支持;需要建立临终关怀互助小组,尽早建立护理规范.

Terminal life of dying patient and their in-house caring guidance requirements for residents in city center of Shanghai

From members in this local district from January 2011 to December 2013, a total of 150 patients with malignant cancer and chronic disease patients of lost of functions and their carers were recruited. A self-tailored interview was conducted via face-to-face communications. And according to 112 （74. 7% ） carets, as compared to hospitalization, the patients were more likely willing to be looked after at home. The 95 （63.3%） earers had a lack of professional earing knowledge and their caring techniques were insufficient. And 97 （64. 7% ） carers were willing receive professional training in nursing and protecting dying patients. In-house terminal care is indeed required by the patients. However its service is best supported by the following aspects. The supports from local medical services and resources; professional training organized by a local social （neighborhood） committee and providing the guidance of in-house caring techniques and information of the relevant disease management. Building up a mutual terminal care group and finalizing the caring standards as soon as possible are essentials.