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Advancing the Care Experience for patients receiving Palliative care as they Transition from hospital to Home (ACEPATH): Codesigning an intervention to improve patient and family caregiver experiences |
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| Authors: | Madeline McCoy BSc MSc Taylor Shorting BA Vinay Kumar Mysore MSc CAAP BA Edward Fitzgibbon MD MSc CCFP (PC) Jill Rice MD MHSc CCFP (PC) Meghan Savigny MDes BDes Marianne Weiss DNSc RN Daniel Vincent MD MSc (HQ) CCFP(PC) (EM) FRCPC Meaghen Hagarty MD CCFP (PC) Krystal Kehoe MacLeod PhD Natalie C. Ernecoff PhD MPH Rex Pattison Mona Kornberg PhD Adrianna Bruni MD MSc CCFP (PC) Shirley H. Bush MBBS MRCGP FAChPM Kerry Kuluski MSW PhD Valerie Fiset RN PhD Cecilia Li MDCM CCFP(PC) FRCPC Henrique A. Parsons MD MSc Geneviève Lalumière RN BScN MN Tara Connolly BEd MA RP Colleen Webber PhD Sarina R. Isenberg MA PhD |
| Affiliation: | 1. Bruyère Research Institute, Ottawa, Ontario, Canada;2. Parsons School of Design, The New School, New York, New York, USA OpenBox, Brooklyn, New York, USA Contribution: Formal analysis, Investigation, Methodology, Project administration, Visualization, Writing - review & editing;3. The Ottawa Hospital, Ottawa, Ontario, Canada Contribution: Conceptualization, Formal analysis, Funding acquisition, Investigation, Project administration, Visualization, Writing - review & editing;4. Bruyère Research Institute, Ottawa, Ontario, Canada Bruyère Continuing Care, Ottawa, Ontario, Canada Department of Medicine, Division of Palliative Care, University of Ottawa, Ottawa, Ontario, Canada Ottawa Hospital Research Institute, Ottawa, Ontario, Canada Contribution: Conceptualization, Formal analysis, Funding acquisition, Investigation, Project administration, Visualization, Writing - review & editing;5. Consultant Contribution: Formal analysis, Investigation, Visualization, Writing - review & editing;6. Marquette University, Milwaukee, Wisconsin, USA;7. The Ottawa Hospital, Ottawa, Ontario, Canada Contribution: Formal analysis, Investigation, Visualization, Writing - review & editing;8. The Ottawa Hospital, Ottawa, Ontario, Canada Bruyère Continuing Care, Ottawa, Ontario, Canada Contribution: Formal analysis, Investigation, Visualization, Writing - review & editing;9. Bruyère Research Institute, Ottawa, Ontario, Canada Department of Medicine, Division of Palliative Care, University of Ottawa, Ottawa, Ontario, Canada Ottawa Hospital Research Institute, Ottawa, Ontario, Canada Department of Family Medicine, University of Ottawa, Ottawa, Ontario, Canada Contribution: Formal analysis, Investigation, Visualization, Writing - review & editing;10. RAND Corporation, Pittsburgh, Pennsylvania, USA Contribution: Formal analysis, Investigation, Methodology, Visualization, Writing - review & editing;11. Caregiver Partner Contribution: Visualization, Writing - review & editing;12. The Ottawa Hospital, Ottawa, Ontario, Canada Contribution: Visualization, Writing - review & editing;13. Institute for Better Health, Trillium Health Partners, Mississauga, Ontario, Canada;14. Champlain Hospice Palliative Care Program, Ottawa, Ontario, Canada School of Nursing, University of Ottawa, Ottawa, Ontario, Canada Contribution: Visualization, Writing - review & editing;15. The Ottawa Hospital, Ottawa, Ontario, Canada Bruyère Continuing Care, Ottawa, Ontario, Canada Department of Medicine, Division of Palliative Care, University of Ottawa, Ottawa, Ontario, Canada Contribution: Visualization, Writing - review & editing;16. The Ottawa Hospital, Ottawa, Ontario, Canada Department of Medicine, Division of Palliative Care, University of Ottawa, Ottawa, Ontario, Canada Ottawa Hospital Research Institute, Ottawa, Ontario, Canada Contribution: Visualization, Writing - review & editing;17. Bruyère Continuing Care, Ottawa, Ontario, Canada Regional Palliative Consultation Team (RPCT), Ottawa, Ontario, Canada Contribution: Investigation, Formal analysis, Visualization, Writing - review & editing;18. Accessibility Institute, Carleton University, Ottawa, Ontario, Canada Contribution: Visualization, Writing - review & editing |
| Abstract: | |
| Keywords: | care transitions codesign health services research palliative care patient and caregiver engagement |