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Supporting the patient and family with mucopolysaccharidosis disorders: the role of patient organizations |
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| Authors: | Christine Lavery (Uma Ramaswami |
| Affiliation: | Society for Mucopolysaccharide and Related Diseases, MPS House, Amersham, Buckinghamshire, UK;Department of Paediatric Endocrinology, Diabetes and Metabolism, Addenbrooke's Hospital, Cambridge, UK |
| Abstract: | |
| Keywords: | Lysosomal storage diseases Mucopolysaccharidoses Patient organizations |