上海地区艾滋病患者的生存质量及其影响因素

目的调查中国文化背景下,在上海地区检测求治的艾滋病患者的生存质量现状及其影响因素。方法以世界卫生组织生存质量测定简表(WHOQOL-BREF)和访谈法分别对78名及118名患者进行定量和定性研究。结果患者生存质量在心理健康、生理健康、人际关系和社会环境4个方面都较差,突出表现为持续而严重的自卑感,身体免疫力低,日常生活严重受损;获得的社会支持较少,社会歧视严重;患者及其家庭经济负担沉重。主要影响因素有2大类:动力性因素包括应对风格、自我认知;资源性因素包括社会支持、生理健康和经济状况;这5个方面存在相互作用。结论在上海地区就诊的艾滋病患者生存质量总体较差,其影响因素间存在相互作用。

QUALITY OF LIFE AND ITS INFLUENCING FACTORS OF PATIENTS WITH HIV /AIDS IN SHANGHAI

Objective To explore the quality of life and its influencing factors of patients with HIV/AIDS in Shanghai. Methods Using the World Health Organization Quality of Life（WHOQOL-BREF） scale to survey 77 patients with AIDS and a semi-structure interview to question 118 patients with AIDS. Results The quality of life in patients with AIDS in Shanghai is poor in four aspects such as mental health,physical health,interpersonal relationship,and social environment. The obvious manifestations were as follows：having continuous sense of inferiority,low immunity,daily living function heavily impaired,getting limited social support,having heavy financial burdens. Coping style,self-consciousness,social support,physical health,and economic condition were the main influencing factors,which had interactive effect on each other. Conclusion The quality of life in patients with HIV /AIDS in Shanghai is significantly lower than the average quality of life in people without AIDS,and its influencing factors interact to each other.