消化道恶性肿瘤确诊初期患者社会支持与生命质量的调查

目的 调查消化道恶性肿瘤确诊初期的患者半年中的社会支持和生命质量变化。方法 采用社会支持评定量表和CARES-SF对146名患者的社会支持和生命质量进行为期半年的追踪调查。结果 消化道恶性肿瘤确诊初期患者的生命质量为中等，其中婚姻关系维度、性关系维度得分半年后下降。患者所获得的社会支持最多的是情感支持，其次是实际支持，信息支持为第三位。情感支持大多来源于家庭成员，信息支持大多来源于医务人员。患者大多很少参与社交活动。在半年中情感支持、实际支持、信息支持的变化模式不一。诊断初期的患者不能有效地利用社会支持。结论 应对确诊初期患者加强咨询，以充分识别和利用社会资源。应持续评估患者的生命质量和社会支持，并制订干预方案，提高消化道恶性肿瘤确诊初期患者的社会支持程度，最终提高其生命质量。

Social Support and Quality of Life of Chinese Patients Newly Diagnosed with Gastrointestinal Cancer

Objectives To investigate social support and quality of life (QOL) of Chinese patients newly diagnosed with gastrointestinal (GIT) cancer, and to examine the pattern of stability and change in social support and quality of life over a six months period. Methods A convenience sample of 146 patients who were newly diagnosed with GIT cancers completed a self-report questionnaire initially 107 completed the follow-up interview 6 months later. Social Support Scale and CARES-SF was used to measure social support and HRQOL. Results Moderate level of quality of life with the decrease in marital and sexual dimensions of HRQOL. Patients considered the overall support they received as moderate, with higher ratings for emotional support followed by practice support, informational support and use of support. Family was the major source of emotional support, and health professional was the primary source of informative support. Most patients withdrew from social activities. The pattern for change and stability of social support varied for emotional support, practical support, and informational support. Patients could not use their social recourse effectively. Conclusion Counseling program must be initiated to help cancer patients identify their social resource. It is important to assess the ongoing social support and quality of life. Intervention must be developed to improve quality of life of Chinese cancer patients.