Views of persons with schizophrenia on their own disorder: an Italian participatory study

OBJECTIVE: This study explored the views of 241 patients with schizophrenia about their own disorder. METHODS: Patients' knowledge of their diagnosis, confidence that they will be well again, and perception of limitations in their own life as a result of the disorder were explored in relation to patients' opinions about the social consequences of schizophrenia. Study results were presented to participants, and suggestions were collected regarding how these study results should be used. RESULTS: Seventy-two respondents (30%) reported that a psychiatrist told them that they have schizophrenia. Respondents who were confident that they would be well again had a lower duration of contact with psychiatric services and a less pronounced perception of affective and social difficulties related to schizophrenia. Respondents who did not feel limited in their life by the disorder reported less social distance and more optimism about the usefulness of treatments. CONCLUSIONS: Participatory studies may provide ideas for a more constructive interaction between patients and professionals.