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Staff perception of the implementation,enablers and barriers to pediatric intensive care unit diary writing: A qualitative study
Affiliation:1. Professional Development, Continuing Education and Research Unit, Bambino Gesù Children''s Hospital IRCCS, Rome, Italy;2. Department of Pediatric Hemato-Oncology, Santobono-Pausilipon Hospital, Naples, Italy;3. Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children''s Hospital IRCCS, Rome, Italy;4. Clinical Psychology Unit, Bambino Gesù Children''s Hospital IRCCS, Rome, Italy;1. School of Nursing and Midwifery, Monash University, Victoria, Australia;2. School of Nursing and Midwifery, Deakin University, Victoria, Australia;3. School of Nursing and Midwifery, Griffith University, Queensland, Australia;4. Intensive Care Unit, Princess Alexandra Hospital, Metro South Health, Queensland Health, Australia;5. Menzies Health Institute Queensland, Griffith University, Queensland, Australia;1. Nottingham Children’s Hospital, Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom;2. Centre for Children and Young People Health Research, School of Health Sciences, Faculty of Medicine and Health Sciences, The University of Nottingham, Nottingham, United Kingdom;3. Library Services, Nottingham University Hospitals NHS Trust, City Campus, Nottingham, United Kingdom;5. Biostatistics, Baylor Scott & White Research Institute, Dallas, TX, United States;1. Yonsei University Graduate School of Public Health, Seoul, Republic of Korea;2. School of Nursing, Hunter College, The City University of New York, NY, USA;3. School of Nursing, The University of Texas Health Science Center at San Antonio, San Antonio, TX, USA;4. College of Nursing, Konyang University, Daejeon, Republic of Korea;1. Department of Anaesthesiology and Intensive Care, Gødstrup Hospital, Hospitalsparken 15, 7400 Herning, Denmark;2. Department of Clinical Medicine, Aarhus University, 8200 Aarhus, Denmark;3. School of Nursing, Faculty of Medicine and Health Sciences, Universitat de Barcelona, Nursing Research Group (GRIN-IDIBELL), Barcelona, Spain;4. Intensive Care Unit, Hospital Universitario de Jaén, Spain;5. Institute for General Medicine, University Hospital of Schleswig-Holstein, Kiel, Germany
Abstract:ObjectivesTo explore how the multi-professional pediatric intensive care unit staff experienced the implementation of the diary.Research Methodology/DesignQualitative study using the implementation research approach.Setting: a six-bed pediatric intensive care unit at a large Italian tertiary care pediatric hospital, treating patients with acute conditions from the Emergency Department or hospital wards.Main outcome measuresHealthcare providers’ experiences of the implementation of the diaries. Data was collected by focus groups and interviews and thematic analysis was performed.FindingsThree focus groups and four interviews with staff were conducted after the implementation of thediaries from August 2020 to June 2021. Staff describe an initial disbelief towards the effectiveness of diaries followed by an increasing perception of their relevance for parents’ emotional expression through shared narration. Diaries are reported as a beneficial communication tool between the family, the child, and health care providers, increasing staff understanding of parents’ experiences of their child’s admission and parents’ sense of the care received by their child. For staff, barriers for diary writing were logistics, lack of time, limited sense of ownership, fear of legal retaliation and fear of emotional labor.ConclusionHealth care providers perceived diaries as beneficial for parents and the healthcare team, potentially supporting their partnership as recommended by Family Centered Care models. The enablers and barriers that emerged for diary writing can support the development of implementation strategies to prevent the reported challenges to diary writing in the healthcare team, enhancing their uptake in the pediatric intensive care unit setting.
Keywords:Diary  Family centered care  Family centered nursing  Focus group  Health  Intensive care  Nursing  Pediatric  Qualitative
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