The lived experience during the peri-diagnostic period of breast cancer: A scoping review |
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| Affiliation: | 1. Department of Engineering Systems and Environment, University of Virginia, Charlottesville, VA, United States;2. Department of Public Health Sciences, University of Virginia, Charlottesville, VA, United States;1. Department of Family Medicine, Rabin Medical Center and Tel Aviv & Dan Districts, Clalit Health Services, Kiriat Ono, Israel;2. Regional Medical Management, Maccabi Healthcare Services, Tel Aviv, Israel;3. Department of Family Medicine, Sackler Faculty of Medicine, Tel Aviv University, Israel;4. Sarid Institute Ltd., Haifa, Israel;5. Department of Education, Western Galilee, Acco, Israel;1. Duke-Margolis Center for Health Policy, Duke University, Durham, NC, USA;2. Fuqua School of Business, Duke University, Durham, NC, USA;3. Sanford School of Public Policy, Duke University, Durham, NC, USA;4. Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA;5. Duke Cancer Institute, Duke University School of Medicine, Durham, NC, USA;6. Department of Pediatrics, Duke University School of Medicine, Durham, NC, USA;1. Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK;2. Faculty of Health, Peninsula Medical School, University of Plymouth, UK;3. Institute of Applied Health Research, University of Birmingham, UK;4. School of Population Health Sciences, Bristol Medical School, University of Bristol, UK;1. General Surgery 3; Cardarelli Hospital, Naples, Italy;2. General and Emergency Surgery, San Camillo Forlanini Hospital, Rome, Italy;3. Oncologic Surgery, Arnas Garibaldi Hospital, Catania, Italy;4. Gastroenterology Unit, Cardarelli Hospital, Naples, Italy;5. General Surgery, Evangelic Hospital Betania, Naples, Italy;6. General Surgery Ospedale di Circolo Hospital, Busto Arsizio, Italy;7. General Surgery, Hospital “G. da Saliceto”, Piacenza, Italy;8. General Surgery, “S. Marta e S. Venera” Hospital, Acireale, Italy;9. General Surgery, Parini Hospital, Aosta, Italy;10. General Surgery, Fornaroli Hospital, Magenta, Italy;11. CIRFF, Center of Pharmacoeconomics, University of Naples Federico II, Naples, Italy;12. NRC Health and Yale School of Medicine, New Haven, CT, USA;13. Nuclear Medicine, Cardarelli Hospital, Naples, Italy |
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| Abstract: | ObjectivesThe aim of this scoping review is to provide an overview of the existing research that investigates the lived experience during the peri-diagnostic period of breast cancer.MethodsNine databases were searched for relevant literature between January 2007 and April 2019. Data were extracted and categorized using deductive and inductive approaches.ResultsA majority of the 66 studies included used qualitative methods to retrospectively explore the treatment decision making process of female breast cancer patients. Patients experienced uncertainty, emotional distress, and a need for more information from providers and relied on social support and family guidance during this period.ConclusionsThe results of this review show that the burdens experienced during the peri-diagnostic period parallel those in later periods of cancer care. However, these burdens are prompted by different circumstances. More research is needed to explore the lived experience during this period through the use of mixed-methods and by recruiting a diverse sample with regards to role in the breast cancer experience, age, gender, race, and ethnicity.Practice implicationsInterventions positioned at earlier points in the breast cancer experience should provide informational support, which could be delivered through shared decision making models. Additional support could be facilitated by patient navigation programs and health information technology. |
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| Keywords: | Breast cancer Breast neoplasm Peri-diagnostic period Patient experience Patient-centered care Scoping review Review Qualitative research |
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