Tracking Functional Status Across the Spinal Cord Injury Lifespan: Linking Pediatric and Adult Patient-Reported Outcome Scores |
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Authors: | Feng Tian Pengsheng Ni MJ Mulcahey Ronald K Hambleton David Tulsky Stephen M Haley Alan M Jette |
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Institution: | 1. Boston University School of Public Health, Health & Disability Research Institute, Boston, MA;2. Jefferson School of Health Professions, Thomas Jefferson University, Philadelphia, PA;3. University of Massachusetts, Amherst, MA;4. University of Michigan, Ann Arbor, MI |
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Abstract: | ObjectiveTo use item response theory (IRT) methods to link scores from 2 recently developed contemporary functional outcome measures, the adult Spinal Cord Injury–Functional Index (SCI-FI) and the Pedi SCI (both the parent version and the child version).DesignSecondary data analysis of the physical functioning items of the adult SCI-FI and the Pedi SCI instruments. We used a nonequivalent group design with items common to both instruments and the Stocking-Lord method for the linking. Linking was conducted so that the adult SCI-FI and Pedi SCI scaled scores could be compared.SettingCommunity.ParticipantsThis study included a total sample of 1558 participants. Pedi SCI items were administered to a sample of children (n=381) with SCI aged 8 to 21 years, and of parents/caregivers (n=322) of children with SCI aged 4 to 21 years. Adult SCI-FI items were administered to a sample of adults (n=855) with SCI aged 18 to 92 years.InterventionsNot applicable.Main Outcome MeasuresFive scales common to both instruments were included in the analysis: Wheelchair, Daily Routine/Self-care, Daily Routine/Fine Motor, Ambulation, and General Mobility functioning.ResultsConfirmatory factor analysis and exploratory factor analysis results indicated that the 5 scales are unidimensional. A graded response model was used to calibrate the items. Misfitting items were identified and removed from the item banks. Items that function differently between the adult and child samples (ie, exhibit differential item functioning) were identified and removed from the common items used for linking. Domain scores from the Pedi SCI instruments were transformed onto the adult SCI-FI metric.ConclusionsThis IRT linking allowed estimation of adult SCI-FI scale scores based on Pedi SCI scale scores and vice versa; therefore, it provides clinicians with a means of tracking long-term functional data for children with an SCI across their entire lifespan. |
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Keywords: | Outcome assessment (health care) Psychometrics Rehabilitation Spinal cord injuries |
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