癫痫患者羞耻感现状调查及影响因素分析

目的 调查描述癫痫患者羞耻感的现状，分析癫痫患者羞耻感的影响因素。 方法 采取便利抽样的方法抽取北京某医院就诊的109例癫痫患者，通过问卷调查的方法，患者自主填写一般资料、Kilifi癫痫患者羞耻感中文版量表、社会支持评定量表、简易应对方式问卷及艾森克人格问卷简式量表中国版，应用多元逐步回归对癫痫患者羞耻感和11个影响因素进行分析。 结果 109例研究对象羞耻感得分为（8.27±5.21）。 家庭人均月收入（回归系数为- 1.325，标准回归系数为-0.209）、病程（回归系数为1.382，标准回归系数为0.269）、客观支持（回归系数为鄄0.474，标准回归系数为-0.228）和对社会支持的利用度（回归系数为-0.877，标准回归系数为-0.291）是癫痫患者羞耻感的影响因素，解释了总变异的27.4%。 结论 国内癫痫患者的羞耻感水平对比其他发展中国家较低；社会客观支持和对社会支持的利用度越高、家庭经济状况越好、病程越短，癫痫患者的羞耻感越低。

The level and influence factors of stigma in people living with epilepsy

Objective To describe the level and influence factors of stigma in people living with epilepsy. Methods A total of 109 epileptics were sampled from a hospital in Beijing through convenience sampling.The selected epileptics were asked to independently fill in designed questionnaires including patients’ general information fo rm,Chinese version of Kilifi Stigma Scale for Epilepsy, Social Support Rating Scale, Simplified Coping Style Questionnaire and EPQ-RSC. The score of epileptics’ stigma and 11 influencing factors（independent variable） were analyzed through multiple step-wise regression. Results The score of epileptics’ stigma was 8.27±5.21 and 6 stigmarelated influencing factors were identified.Among these factors, family per capita income （regression coefficient was -1.325，standard regression coefficient was -0.209），course of disease（regression coefficient was 1.382, standard regression coefficient was 0.269），objective support （regression coefficient was -0.474，standard regression coefficient was -0.228） and availability of social support （regression coefficient was -0.877，standard regression coefficient was -0.291) were included in regression equations with an explained variance of 27.4% . Conclusion The stigma of epileptics in China keeps a lower level than that in other developing countries. The research results show that high social support and social support availability, good family economic conditions and short course of disease can effectively reduce stigma. The next step is supposed to focus on how to further reduce epileptics’ stigma through intervention.