Participation of patients and family members in healthcare services at the service and national levels: A lesson learned in Dublin,Ireland |
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| Institution: | 1. Department of Radiology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;2. University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, North Carolina;3. Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina;1. Diabetes Educator, IDF-Expert Trainer for Diabetes Conversations Map Tools Programme, Faculty Member of Young Leaders in Diabetes (IDF), Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Plot No. 1-2, II-B, Block 2, Nazimabad, Karachi 74600, Pakistan;2. Consultant Physician, Department of Medicine, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Plot No. 1-2, II-B, Block 2, Nazimabad, Karachi 74600, Pakistan;3. International Lead Facilitator, Healthy Interactions, 351 West Hubbard St. #400, Chicago, IL 60654, United States;4. Assistant Professor of Biochemistry, Baqai Medical University, Karachi, Pakistan;5. Senior Research Scientist, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Plot No. 1-2, II-B, Block 2, Nazimabad, Karachi 74600, Pakistan;6. Professor of Medicine, Department of Medicine, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Plot No. 1-2, II-B, Block 2, Nazimabad, Karachi 74600, Pakistan |
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| Abstract: | ObjectiveIdentify the current amount and intensity of patient and family participation at the patient, service and national levels from a diabetes and a psychiatric service perspective. Establish the current level of support for greater participation and related characteristics.MethodResearcher-administered questionnaires were conducted with 738 patients and family members in an outpatient type 2 diabetes service and an outpatient psychiatric service, both in Dublin, Ireland.ResultsPatient and family participation at the service and national levels are restricted to the provision of information. Typically no involvement in discussions or the decision -making process is reported. The majority of participants favour greater patient participation at the service level (537/669; 80.3%) and the national level (561/651; 86.2%). Greater support for patient and family member participation is significantly associated with participant’s age, service satisfaction and level of education.ConclusionPatient and family participation is greatest at the patient level. The majority of patients and family members support greater participation at the service and national levels.Practice implicationsThe best way to implement participation needs to be identified. There needs to be a greater focus on participation at the service level. The role of family members also needs to be investigated further. |
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| Keywords: | Patient participation Family participation Diabetes Psychiatric Outpatient Healthcare services |
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