癌症患者的信息需求--病人、亲属、医护人员观点比较

目的：探讨癌症患者、亲属、医护人员对医患之间交流肿瘤信息观点的异同。方法：随机抽取501例癌症患者、169位亲属和86位医护人员，进行IPQCP 2、INQ、DQ测定和分析。结果：在癌症患者、亲属、医护人员之间，患者与亲属或与医护人员之间，关于应否告知癌症患者其诊断、可能的生存时间和病人应否参与制定治疗方案，IPQCP总均分和各维度均分、总的信息内容和信息量选择倾向、交流形式(包括信息来源、告知方式、时间、地点、在场人员及医生态度等)均有显著性差异。结论：在临床上，给予癌症患者信息和医息交流的主要依据是患者本人的意见。

Information Needs of Cancer Patients (3)A Comparison of Views between Cancer Patients,Their Relatives, Doctors and Nurses

Objectives:To compare the views among cancer patients, their relatives, doctors and nurses towards cancer associated information and communication needs of cancer patients.Methods:A total of 501 cancer patients, 169 relatives,86 doctors and nurses were asked to complete the Information Preference Questionnaire of Cancer Patients and 2 questions regarding general information amount and content (IPQCP+2) and the Information Need Questionnaire.Results:The views among cancer patients, their relatives, medical staffs, between patients and relatives, or between patients and medical staffs were significantly different. The differences include the viewpoints on whether to disclose the diagnosis of cancer or to inform the life expectancy to cancer patients, and whether the patients should participate in decisions about their medical care and treatment. The mean score of IPQCP total and its 4 dimensions, the opinions on general information amount and content for patients were significantly different among the three groups. Their preferred style of giving information and communication, including how, by whom, when, where, in whose presence and the doctors' attitude were different.Conclusions:The views and requests of cancer patients themselves are main basis of doctor-patient communication of information regarding cancer.