Communication assessment for individuals with Rett syndrome: A systematic review |
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| Authors: | Jeff Sigafoos Debora Kagohara Larah van der Meer Vanessa A Green Mark F O’Reilly Giulio E Lancioni Russell Lang Mandy Rispoli Dimitrios Zisimopoulos |
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| Institution: | 1. School of Biomedical Sciences, Curtin University, Perth, Western Australia, Australia;2. School of Public Health, Curtin University, Perth, Western Australia, Australia;3. Telethon Kids Institute, The University of Western Australia, Perth, Western Australia, Australia;4. School of Physiotherapy and Exercise Science, Curtin University, Perth, Australia;5. Department of Paediatric Endocrinology, Sydney Children''s Hospital, Randwick, New South Wales, Australia |
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| Abstract: | We reviewed studies that aimed to determine whether behaviors, such as body movements, vocalizations, eye gaze, and facial expressions, served a communicative function for individuals with Rett syndrome. A systematic search identified eight studies, which were summarized in terms of (a) participants, (b) assessment targets, (c) assessment protocols, (d) main findings, and (e) evidence of communication. The eight studies included 41 females with Rett syndrome, ranging from 2.7 (years.months) to 36 years of age. All studies used direct behavioral observations to assess participants’ behavior. Half the studies also used standardized assessments and interviews. Evidence of communication behavior was found for at least some participants in each study, but the validity of this evidence is unknown. Still, the observation-based approaches described in these studies may enable clinicians to identify a range of potential communicative forms and functions, which could be useful for intervention planning. |
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