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A comparison between self-reported and observed activity limitations in adults with neuromuscular disorders
Authors:Vandervelde Laure  Dispa Delphine  Van den Bergh Peter Y  Thonnard Jean-Louis
Affiliation:a Rehabilitation and Physical Medicine Unit, Université catholique de Louvain, Brussels, Belgium
b Neuromuscular Center & Neurology Department, Cliniques Universitaires Saint-Luc, Brussels, Belgium
Abstract:Vandervelde L, Dispa D, Van den Bergh PY, Thonnard J-L. A comparison between self-reported and observed activity limitations in adults with neuromuscular disorders.

Objective

To investigate the agreement between the self-reported and examiner-reported difficulties of patients with neuromuscular disorders (NMDs) in performing daily activities at home.

Design

A comparison between 2 methods of administering a measurement instrument.

Setting

Neuromuscular reference center in a university hospital.

Participants

Adult patients (N=57) with diagnosed NMDs living at home.

Interventions

Not applicable.

Main Outcome Measure

The ACTIVLIM questionnaire.

Results

The intraclass correlation coefficient, model 2,1 (ICC2,1), between the measures was very good (ICC2,1=.87), indicating a good agreement between self-perceived and observed measures.

Conclusions

The use of ACTIVLIM as a self-reporting questionnaire is a valid method for assessing activity limitations in patients with NMD.
Keywords:Neuromuscular diseases   Outcome assessment (health care)   Questionnaires   Rehabilitation   Task performance and analysis
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