Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care |
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Authors: | Ellen Burke Beckjord Neeraj K Arora Wendy McLaughlin Ingrid Oakley-Girvan Ann S Hamilton Bradford W Hesse |
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Institution: | (1) RAND Corporation, 4570 Fifth Avenue, Room 4422, Pittsburgh, PA 15213, USA;(2) Outcomes Research Branch (ORB), Applied Research Program (ARP), Division of Cancer Control and Population Sciences (DCCPS), National Cancer Institute (NCI), National Institutes of Health (NIH), Bethesda, MD, USA;(3) Applied Research Program (ARP), Division of Cancer Control and Population Sciences (DCCPS), National Cancer Institute (NCI), National Institutes of Health (NIH), Bethesda, MD, USA;(4) Northern California Cancer Center (NCCC), Fremont, CA, USA;(5) Department of Health Research and Policy, Stanford University School of Medicine, Stanford, CA, USA;(6) Stanford Comprehensive Cancer Center, Stanford University School of Medicine, Stanford, CA, USA;(7) Keck School of Medicine, University of Southern California, Los Angeles, CA, USA;(8) Health Communication and Informatics Research Branch, Behavioral Research Program (BRP), DCCPS, NCI, National Institutes of Health (NIH), Bethesda, MD, USA |
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Abstract: | Background This study describes the information needs of adult cancer survivors, identifies sociodemographic, health, and healthcare-related
factors associated with information needs, and examines the relationship between information needs and survivors’ perceived
mental and physical health.
Methods One thousand forty survivors 2–5 years post-diagnosis who were identified via two cancer registries were included in the present
analysis. Self-report questionnaires assessed six categories of information needs, sociodemographic, health, and healthcare-related
variables, and perceived mental and physical health.
Results Information needs were prevalent and varied; most survivors need more information about tests and treatments, health promotion, side effects and symptoms, and interpersonal and emotional issues. Multivariate analyses suggested that survivors who were younger, who reported non-White race/ethnicity, who reported
less than excellent quality of follow-up cancer care, and who had more comorbid health conditions had more information needs. After adjustment
for sociodemographic and health-related variables, more information needs were associated with worse perceived mental and
physical health.
Conclusions Most cancer survivors needed more information about maintaining good health outcomes during survivorship. Health communication
interventions, such as Survivorship Care Plans, have excellent potential to address survivors’ information needs while improving
quality of follow-up cancer care and health-related quality of life. |
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Keywords: | Cancer survivorship Information needs Quality of care |
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