Evaluation of quality of life among the caregivers of asthmatic children: The new IFABI-R questionnaire |
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| Authors: | D Forns R Prat E Tauler |
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| Affiliation: | 1. Barcelona Autonomous University, Faculty of Psychology, Department of Clinical Psychology and Health, Barcelona, Spain;2. Barcelona Autonomous University, Faculty of Psychology, Department of Psychobiology and Health Sciences Methodology, Barcelona, Spain;3. Sant Joan de Déu Hospital, Martorell, Pediatric Allergy Unit, Barcelona, Spain;1. Departamento de Cirugía Ortopédica y Traumatología, Complejo Hospitalario de Palencia, Palencia, España;2. Departamento de Cirugía Ortopédica y Traumatología, Hospital Clínico San Carlos, Madrid, España;3. Departamento de Anatomía Patológica, Hospital Clínico San Carlos, Madrid, España;4. Departamento de Epidemiología, Hospital Clínico San Carlos, Madrid, España;5. Departamento de Cirugía Ortopédica y Traumatología, Hospital Clínico San Carlos, Madrid, España;1. Christian Doppler Laboratory for Allergy Research, Division of Immunopathology, Department of Pathophysiology and Allergy Research, Center for Pathophysiology, Infectiology and Immunology, Medical University of Vienna, Austria;2. Molecular Biotechnology Section, University of Applied Sciences, Campus Vienna Biocenter, Vienna, Austria;3. Clinical Institute for Medical and Chemical Laboratory Diagnostics, Medical University of Vienna, Austria;4. Biomay AG, Vienna, Austria;5. Department of Allergy, Hospital La Paz Health Research Institute (IdiPAZ), Madrid, Spain;6. Second Department of Pediatrics, University of Athens, Greece;1. Neumología, Hospital Universitario San Pedro de Alcántara, Cáceres, Spain;2. Sección Unidad de Asma, Laboratorio de Exploración Funcional, Departamento de Neumología, Hospital Universitario Cruces, BioCruces, Barakaldo, Bizkaia, Spain;3. Neumología, Hospital Universitario Cruces, BioCruces, Barakaldo, Bizkaia, Spain;4. Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Spain;5. Universidad del País Vasco (UPV-EHU), Leioa, Bizkaia, Spain;1. Servei de Pneumologia, Hospital Universitari Germans Trias i Pujol, Badalona, Barcelona, Spain;2. Barcelona Research Network (BRN), Barcelona, Spain;3. Centro de Investigaciones Biomédicas en Red de Enfermedades Respiratorias (CIBERES), Barcelona, Spain;4. Departament de Medicina, Universitat Autónoma de Barcelona, Barcelona, Spain;1. Department of Hematology, University Hospital Virgen del Rocío/IBIS/CSIC/University of Seville, Seville, Spain;2. Department of Hematology, University Hospital of Salamanca, Salamanca, Spain |
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| Abstract: | BackgroundThe health-related quality of life (HRQoL) of asthmatic children and their caregivers is correlated to management of the disease and the presence of certain morbidity indicators. The integral assessment of paediatric asthma must include the evaluation of HRQoL among the caregivers, although existing questionnaires only partially assess the dimensions of this aspect. The present study describes a new questionnaire for evaluating HRQoL among the caregivers, comprising three dimensions (functional, emotional, and socio-occupational).Material and methodsThe study involves two phases. A total of 81 patients between 3 and 9 years of age and their caregivers participated in the first phase, involving a qualitative and psychometric study of the preliminary version of the questionnaire (IFABI). A total of 137 patients between 2 and 17 years of age and their caregivers participated in the second phase, in which the revised version of the questionnaire (IFABI-R) was developed and subjected to psychometric evaluation.ResultsFirst phase: The IFABI showed important reliability and internal consistency (Cronbach alpha=0.93), concurrent validity requiring improvement, and a scantly clear internal structure. Second phase: The IFABI-R showed important reliability and internal consistency (Cronbach alpha=0.90), adequate concurrent validity, and a three-dimensional structure whose three factors correspond to the three dimensions of the questionnaire.ConclusionsThe good psychometric results obtained with the IFABI-R justify its use in paediatric asthmatic patients. The questionnaire is currently being scaled, and its sensitivity to change is being assessed. |
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