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Patient-Centered Strategies to Improve Radiographic Practice for Patients with Down Syndrome: A Systematic Review
Affiliation:1. Medical Imaging, Latrobe Regional Hospital, Traralgon, Victoria, Australia;2. Department of Medical Imaging and Radiation Sciences, Monash University, Melbourne, Victoria, Australia;3. Professional Communication Program, School of Education and the Arts, Central Queensland University, Rockhampton, Queensland, Australia;1. Department of Radiation Oncology, Cross Cancer Institute, Edmonton, Alberta, Canada;2. Department of Surgery, University of Calgary, Calgary, Alberta, Canada;3. Department of Ophthalmology, Faculty of Medicine and Dentistry, Royal Alexandra Hospital, Edmonton, Alberta, Canada;1. Department of Diagnostic Radiology, Oulu University Hospital, POB 50, 90029 OYS, Oulu, Finland;2. Oulu University of Applied Sciences, Kiviharjuntie 8, 90220 Oulu, Finland
Abstract:BackgroundDown syndrome is a common human genetic disorder caused by trisomy of chromosome 21. Individuals with Down syndrome can present with a range of health issues during their lives that may require imaging for diagnosis. Radiographers, therefore, play a significant role in the management and communication of Down syndrome patients' health.PurposeThis review identified patient-centered strategies that radiographers should use to provide quality imaging services for Down syndrome patients, who may have limited verbal ability and behavioral issues.MethodA systematic review using the established PRISMA guidelines was undertaken of current literature obtained through the Ovid and Scopus databases. A total of 189 articles were found, of which 41 were categorized and analyzed in detail.FindingsA high level of care for Down syndrome patients will require longer than usual procedures, and the patients will not respond well to being rushed or ignored. Down syndrome patients have difficulty verbalizing, yet they understand more than is often thought. Individuals may require increased imaging time to give them time to respond, especially to pain. Patients are at risk of injury with AAI or other pathologies, and caution should be taken with flexion and extension spine x-rays. Radiographs may reveal undisclosed physical abuse.ConclusionSpecific strategies with verbal and nonverbal communication help to facilitate communication, reduce anxiety and fear, and improve compliance with Down syndrome patients. Patients may require an increased level of care; increased imaging time; and allowing support people to be present during the examination process.
Keywords:radiography  systematic review  Down syndrome  patient-centered care
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