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Entertainment education for breast cancer surgery decisions: A randomized trial among patients with low health literacy
Authors:Maria L. Jibaja-Weiss  Robert J. VolkThomas S. Granchi  Nancy E. NeffEmily K. Robinson  Stephen J. SpannNoriaki Aoki  Lois C. FriedmanJ. Robert Beck
Affiliation:a Department of Family and Community Medicine, Baylor College of Medicine, USA
b Department of General Internal Medicine, Ambulatory Treatment & Emergency Care, Houston Center for Education and Research on Therapeutics, The University of Texas M. D. Anderson Cancer Center, USA
c Acute Surgical Care Specialist, LLP, USA
d Department of Surgery, The University of Texas Health Science Center, Houston, USA
e Senior Vice-President and Dean of Clinical Affairs, Baylor College of Medicine, USA
f School of Health Information Sciences, The University of Texas Health Science Center, Houston, USA
g Center for Health Service, Outcomes Research and Development-Japan (CHORDJ), Japan
h Department of Psychiatry, Case Medical Center, University Hospitals Ireland Cancer Center, USA
i Office of the Vice President for Information Services, Fox Chase Cancer Center, USA
Abstract:

Objective

To evaluate an entertainment-based patient decision aid for early stage breast cancer surgery in low health literacy patients.

Methods

Newly diagnosed female patients with early stage breast cancer from two public hospitals were randomized to receive an entertainment-based decision aid for breast cancer treatment along with usual care (intervention arm) or to receive usual care only (control arm). Pre-decision (baseline), pre-surgery, and 1-year follow-up assessments were conducted.

Results

Patients assigned to the intervention arm of the study were more likely than the controls to choose mastectomy rather than breast-conserving surgery; however, they appeared better informed and clearer about their surgical options than women assigned to the control group. No differences in satisfaction with the surgical decision or the decision-making process were observed between the patients who viewed the intervention and those assigned to the control group.

Conclusions

Entertainment education may be a desirable strategy for informing lower health literate women about breast cancer surgery options.

Practice Implications

Incorporating patient decision aids, particularly computer-based decision aids, into standard clinical practice remains a challenge; however, patients may be directed to view programs at home or at public locations (e.g., libraries, community centers).
Keywords:Patient decision aids   Breast cancer surgery   Health literacy
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