| 临床队列研究的数据标准与共享 |
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| 引用本文： | 岳和欣,湛永乐,边峰,张一方,桂路婷,石英杰,孟耀涵,张娟,江宇. 临床队列研究的数据标准与共享[J]. 中华流行病学杂志, 2021, 42(7): 1299-1305 |
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| 作者姓名： | 岳和欣 湛永乐 边峰 张一方 桂路婷 石英杰 孟耀涵 张娟 江宇 |
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| 作者单位： | 中国医学科学院/北京协和医学院群医学及公共卫生学院, 北京 100730 |
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| 基金项目： | 中国医学科学院医学与健康科技创新工程（2019-I2M-2-004）；食管癌和肝癌专病队列研究 |
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| 摘 要： | 数据标准在临床队列研究的数据收集、整合及共享过程中发挥着重要作用，并逐渐受到重视。本研究通过对5项国际成熟的数据标准模型进行综述，总结其特点和发展现状，并将各模型的数据模块与临床队列通用数据集进行匹配，以探究国际数据标准模型的适用性，为我国临床队列研究数据标准模型的制定与完善提供参考。
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| 关 键 词： | 临床 队列研究 数据 标准 共享 |
| 收稿时间： | 2020-06-10 |
Data standard and data sharing in clinical cohort studies |
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| Yue Hexin,Zhan Yongle,Bian Feng,Zhang Yifang,Gui Luting,Shi Yingjie,Meng Yaohan,Zhang Juan,Jiang Yu. Data standard and data sharing in clinical cohort studies[J]. Chinese Journal of Epidemiology, 2021, 42(7): 1299-1305 |
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| Authors: | Yue Hexin Zhan Yongle Bian Feng Zhang Yifang Gui Luting Shi Yingjie Meng Yaohan Zhang Juan Jiang Yu |
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| Affiliation: | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China |
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| Abstract: | Data standard plays an important role in the process of data collection, Integration and sharing in clinical cohort studies, and more attention have been paid to it. This paper summarizes the 5 international proven data standard model, analyze their characteristics and development status, and match their data modules with the general data set of the clinical cohorts to evaluate the international data standard models'' applicability and provide reference for the development and improvement of the data standard model for clinical cohort studies in China. |
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| Keywords: | Clinical Cohort study Data Standard Sharing |
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