Getting cancer prevalence right: using state cancer registry data to estimate cancer survivors |
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| Authors: | William R Carpenter Sara E Wobker " target="_blank">Paul A Godley |
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| Institution: | (1) Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, 1102A McGavran Greenberg Hall, CB 7411, Chapel Hill, NC 27599, USA;(2) Cecil G. Sheps Center for Health Services Research, UNC, Chapel Hill, NC, USA;(3) UNC Lineberger Comprehensive Cancer Center, Chapel Hill, NC, USA;(4) North Carolina Comprehensive Cancer Program, Raleigh, NC, USA;(5) Allergan, Inc., Irvine, CA, USA;(6) Department of Hematology/Oncology, School of Medicine, UNC, Chapel Hill, NC, USA |
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| Abstract: | Objective Cancer incidence and mortality statistics provide limited insight regarding the cancer survivor population and its needs.
Cancer prevalence statistics enumerate cancer survivors—those currently living with cancer. Commonly used limited-duration
prevalence (LDP) methods yield biased estimates of the number of survivors. National estimates may not allow sufficient granularity
to inform local survivorship programs. In this study, complete prevalence (CP) methods are applied to actual North Carolina
Central Cancer Registry (NCCCR) data to generate better, more informative prevalence estimates than previous methods. |
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