Patients' perceptions of self-help groups in achalasia

The possible role of a self-help group was investigated among 126 patients with achalasia. Forty-one patients initially expressed an interest, but only 19 were willing to complete a questionnaire about their role in such a group. Only 14 patients were willing to be identified by other sufferers, and only 8 were ready to take an active part in organising meetings. Although patients with achalasia want more information about their disease, few wish to join a self-help group.