脑卒中患者病耻感量表的编制及信效度检验

目的编制脑卒中患者病耻感量表并进行信效度检验,为脑卒中患者病耻感测量提供评估工具。方法在质性访谈及文献回顾的基础上,根据脑卒中患者病耻感感知理论框架形成条目池;经过专家咨询后形成原始量表。采用原始量表对288例脑卒中住院患者进行调查。结果脑卒中患者病耻量表包括4个维度16个条目。各条目内容效度为0. 910～1. 000,量表内容效度为0. 989。探索性因子分析提取躯体障碍、社会交往、受歧视经历和自我感受4个因子,方差累积贡献率为68. 051%。量表及各维度得分与焦虑评分分呈正相关(P <0. 01)。总量表Cronbach'sα为0. 916,各维度Cronbach'sα为0. 771～0. 864。量表重测信度为0. 924(均P <0. 01),各维度重测信度为0. 735～0. 886(均P <0. 01)。结论脑卒中患者病耻量表具有较好的信效度,可从躯体障碍、社会交往、受歧视经历和自我感受4个方面有效地评估脑卒中患者病耻感状态,可作为脑卒中患者病耻感客观的评价工具。

Development and reliability and validity test of Stroke Stigma Scale

Objective To compile the Stroke Stigma Scale, to test its reliability and validity, and to provide an evaluation tool for measuring stigma of stroke patients. Methods On the basis of qualitative interviews and literature review, an item pool was formed according to the theoretical framework of stigma perception in stroke patients.The original scale was formed after consultation. A total of 288 inpatients with stroke were selected, and were investigated by the original scale. Results The Stroke Stigma Scale consisted of 4 dimensions, totaling 16 items. The content validity indexes of the items ranged from 0.910 to 1.000, and the content validity index of the scale was 0.989. Four factors (physical disorder, social interaction, experience of discrimination and self-perception) were extracted through exploratory factor analysis, while the cumulative contribution rate of variance was 68.051%.There was a positive correlation between total and dimension scores of stigma and scores of anxiety (all P <0.01). The Cronbach′s α coefficient was 0.916 for the scale, and 0.771-0.864 for the dimensions.The retest reliability coefficient was 0.924 for the scale ( P < 0.01), and 0.735-0.886 for the dimensions (all P <0.01). Conclusion The Stroke Stigma Scale is reliable and valid, which can serve as an objective tool to evaluate stigma of stroke patients from four aspects: physical impairment, social communication, experience of discrimination and self-perception.