Participation in People Living With Spinal Cord Injury in Switzerland: Degree and Associated Factors |
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| Institution: | 1. Swiss Paraplegic Research, Nottwil, Switzerland;2. University of Groningen, University Medical Center Groningen, Department of Rehabilitation Medicine, Groningen, the Netherlands;3. Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, the Netherlands;4. Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland;5. REHAB Basel, Basel, Switzerland;6. Clinique Romande de Réadaptation, Sion, Switzerland;7. Swiss Paraplegic Center, Nottwil, Switzerland;1. Medical School of Shihezi University, Shihezi, Xinjiang, China;2. Department of Psychology Rehabilitation, the First Affiliated Hospital of the Medical College, Shihezi University, Shihezi, Xinjiang, China;1. Masters and Doctoral Programs in Physical Therapy, Universidade Cidade de Sao Paulo, Sao Paulo, Brazil;2. Musculoskeletal Health Sydney, School of Public Health, The University of Sydney, Sydney, Australia;1. Brooks Rehabilitation Hospital, Jacksonville, Florida, the United States;2. The Ohio State University College of Medicine, Columbus, Ohio, the United States;3. Center for Rehabilitation Science and Engineering, Virginia Commonwealth University School of Medicine, Richmond, Virginia, the United States;4. Icahn School of Medicine at Mount Sinai, New York, New York, the United States;5. Wayne State University, Detroit, Michigan, the United States;6. Indiana University School of Medicine, Indianapolis, Indiana, the United States;7. Institute for Clinical Outcomes Research and University of Utah School of Medicine, Salt Lake City, Utah, the United States;8. Rocky Mountain University of Health Professions, Provo, Utah, the United States;9. Ohio State University Wexner Medical Center, Columbus, Ohio, the United States;1. TIRR Memorial Hermann, Brain Injury Research Center, Houston, TX;2. Baylor College of Medicine, Department of Physical Medicine and Rehabilitation, Houston, TX;3. Zabolocki VA Medical Center, Milwaukee, WI;4. Craig Hospital, Research Department, Englewood, CO;5. University of Texas Health Science Center at Houston, School of Public Health, Department of Biostatistics and Data Science, Houston, TX;1. Center for Rehabilitation Outcomes Research, Department of Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University, Evanston, Illinois |
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| Abstract: | ObjectiveTo describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland.DesignCross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation.SettingCommunity.ParticipantsSwiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549).InterventionsNot applicable.Main Outcome MeasureThe USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social).ResultsFrequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education.ConclusionsThis study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation. |
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| Keywords: | Community participation Rehabilitation Social participation Spinal cord injuries ANOVA"} {"#name":"keyword" "$":{"id":"kwrd0035"} "$$":[{"#name":"text" "_":"analysis of variance CTREE"} {"#name":"keyword" "$":{"id":"kwrd0045"} "$$":[{"#name":"text" "_":"conditional inference trees ICF"} {"#name":"keyword" "$":{"id":"kwrd0055"} "$$":[{"#name":"text" "_":"International Classification of Functioning Disability and Health SCI"} {"#name":"keyword" "$":{"id":"kwrd0065"} "$$":[{"#name":"text" "_":"spinal cord injury SwiSCI"} {"#name":"keyword" "$":{"id":"kwrd0075"} "$$":[{"#name":"text" "_":"Swiss Spinal Cord Injury Community Survey USER-Participation"} {"#name":"keyword" "$":{"id":"kwrd0085"} "$$":[{"#name":"text" "_":"Utrecht Scale for Evaluation of Rehabilitation-Participation |
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