Telehealth information and communication technology access for family caregivers of people with intellectual and developmental disabilities and mental health needs |
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| Institution: | 1. Department of Occupational Therapy, University of Florida, United States;2. National Center for START Services, Institute on Disability, University of New Hampshire, United States;3. Kennedy Krieger Institute, United States;4. Georgetown University National Center for Cultural Competence & University Center for Excellence in Developmental Disabilities, Georgetown University Medical Center, United States;1. Johns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA;2. Cochlear Center for Hearing and Public Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA;3. Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA;4. Department of Otolaryngology, Johns Hopkins University School of Medicine, Baltimore, MD, USA;1. Department of Community and Behavioral Health, Washington State University College of Medicine, USA;2. The Disability Health Research Center, Johns Hopkins University, USA;1. Department of Health and Society, University of Toronto Scarborough, 1265 Military Trail, Toronto, Ontario, Canada;2. Dalla Lana School of Public Health, University of Toronto, 155 College Street, Toronto, Ontario, Canada;3. Women''s College Research Institute, Women''s College Hospital, 76 Grenville Street, Toronto, Ontario, Canada;4. Division of Adolescent Medicine, Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, Canada;5. Department of Pediatrics, University of Toronto, 555 University Avenue, Toronto, Ontario, Canada;1. University of Michigan Medical School, 1500 E Medical Center Drive, F3055 Taubman Center Ann Arbor, MI 48109, USA;2. Limb Horizons;3. University of Michigan, Ann Arbor, 1500 E Medical Center Drive, F3055 Taubman Center Ann Arbor, MI 48109, USA;4. Michigan State University College of Human Medicine, 15 Michigan St. NE, Grand Rapids, MI 49503, USA;5. Department of Urology, Duke University, 2301 Erwin Rd. Durham, North Carolina 27710, USA;6. Department of Surgery, Duke University, 2301 Erwin Rd. Durham, North Carolina 27710, USA;7. Department of Urology, University of Michigan, 1500 E Medical Center Drive, F3055 Taubman Center Ann Arbor, MI 48109, USA;8. Department of Pediatrics, University of Michigan, 1500 E Medical Center Drive, F3055 Taubman Center Ann Arbor, MI 48109, USA;1. National Research and Training Center on Blindness and Low Vision, Mississippi State University, P. O. Box 6189, Miss. State, MS 39762, USA;2. Department of Anthropology, Sociology, and Criminology, Troy University, 327 MSCX, Troy, AL 36082, USA;1. Penn State College of Medicine, 700 HMC Cres Road, Hershey, 17033, PA, USA;2. Beth Israel Deaconess Medical Center, 330 Brookline Ave, Boston, 02215, MA, USA;3. Children''s Hospital Los Angeles, 4650 Sunset Blvd, Los Angeles, 90027, CA, USA;4. University of South Florida Morsani College of Medicine, 560 Channelside Dr, Tampa, 33602, FL, USA;5. Duke University School of Medicine, 40 Duke Medicine Circle, 124 Davison Building, Durham, 27710, NC, USA |
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| Abstract: | BackgroundTelehealth is increasingly used to deliver mental health services. However, the potential benefits of telehealth for people with intellectual and developmental disabilities and mental health needs (IDD-MH) may not be fully realized. This study addresses gaps in knowledge about access to information and communication technologies (ICTs) for individuals with IDD-MH from the perspective of their family caregivers.ObjectiveWhat factors are associated with access to ICTs among family caregivers of people with IDD-MH who use START services?MethodsRetrospective analysis of cross-sectional interview data gathered for START use at the onset of COVID-19. START is a crisis prevention and intervention evidence-based model for people with IDD-MH implemented across the USA. To assess needs during COVID-19, START coordinators conducted interviews with 1455 family caregivers between March and July 2020. A multinomial regression model examined correlates of ICT access, as indicated by an index (poor, limited, and optimal access). Correlates included the level of IDD, age, gender, race, ethnicity, rural setting of the person with IDD-MH, and caregiver status.ResultsAge (ages 23–30 years) and sole caregiver status were significantly associated with limited access (both p ≤ .001). Age (ages 23–30 years and ≥31 years, p < .001), race (Black or African American, p = .001), ethnicity (Hispanic, p = .004), and sole caregiver status (p < .001) were significantly associated with poor access.ConclusionsDisparities existed in ICT access for adults, specific racial/ethnic groups, and sole caregiver households. Healthcare policy related to telehealth must consider how ICT access can be equitable for all users with IDD-MH. |
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| Keywords: | Intellectual disability Developmental disabilities Mental health Telemedicine |
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