癫痫儿童生活质量的研究

目的　研究癫痫儿童的生活质量 (QOL)、影响因素及心理干预治疗效果。方法　对 70例符合入选标准的癫痫患者和对照者 70例 ,进行癫痫患者生活质量量表 3 1(QOLIE 3 1)的评估 ,并在癫痫组中 ,随机抽取 45例进行心理干预治疗。结果　癫痫组较对照组QOL明显降低 ,儿童抑郁量表 (CDI)评分明显增高 (P<0 .0 1)。心理抑郁、家庭环境、发作担忧、记忆功能、药物影响、发作频率等多种因素对QOL影响较大 ,相关程度呈递减趋势。心理干预治疗后 ,癫痫患儿QOL明显改善 ,各项得分及总评分均有明显提高 (P <0 .0 1)。结论　癫痫患儿QOL明显降低 ,心理抑郁、家庭环境、发作担扰对QOL影响较大 ,加强对癫痫儿童的综合治疗 ,控制痫性发作是提高其QOL的前提 ,心理干预治疗是提高QOL的关键

Study of the quality of life in children with epilepsy

Objective To study the quality of life, influencing factors and the effects of psychological intervention in children with epilepsy. Methods The QOLIE 31 was administered to 70 children with epilepsy who met the entry criteria (epileptic group). Seventy normal children who had the similar personal characters served as control (control group). The psychological intervention was given to 45 patients who were selected at random from the epileptic group. Results Compared with control group, QOL score was lower in epileptic group ( P <0.01). Many influencing factors were very important. In decreasing order of importance, these factors were psychological depression, family environment, seizure worry, memory function, side effects of AEDS, and frequency of seizure attack. After psychological intervention, the QOL was significantly improved ( P <0.01), and nonintervention epileptic children's QOL was not changed. Conclusion QOL in children with epilepsy was lower than normal children. Depression,seizure worry and family environment played important roles in QOL. General comprehensive care should be applied to children with epilepsy. Although adequate drug treatment to control the seizure attacks was very important, psychological intervention was indispensable and it was the key to improve the QOL of epileptic patients.