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Shared decision making in youth with brachial plexus birth injuries and their families: A qualitative study
Institution:1. Division of Plastic and Reconstructive Surgery, The Hospital for Sick Children, Toronto, Canada;2. Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada;3. Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Toronto, Canada;4. Department of Physical Therapy, University of Toronto, Toronto, Canada;5. Department of Surgery, University of Toronto, Toronto, Canada;6. Bloorview Research Institute, Toronto, Canada;1. Department of Internal Medicine, University of Iowa Carver College of Medicine, 200 Hawkins Drive, Iowa City IA 52242, USA;2. Office of Consultation and Research in Medical Education, University of Iowa Carver College of Medicine, 200 Hawkins Drive, Iowa City IA 52242, USA;1. Social and Administrative Sciences in Pharmacy Division, University of Wisconsin, Madison School of Pharmacy, Madison, WI 53705, USA;2. American Family Children’s Hospital, Madison, WI 53705, USA;3. University of Wisconsin, Madison School of Pharmacy, Madison, WI 53705, USA;1. Department of Medicine, Stanford Healthcare, Stanford, CA, USA;2. Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA;3. Division of Adolescent/Young Adult Medicine, Boston Children’s Hospital, Boston, MA, USA;4. Department of Cardiology, Boston Children’s Hospital, Boston, MA, USA;1. Office of the Patient Experience, University of Iowa Hospitals & Clinics, Iowa City, IA, USA;2. Department of Internal Medicine, University of Iowa Hospitals & Clinics, Iowa City, IA, USA;3. Department of Family Medicine, University of Iowa Carver College of Medicine, Iowa City, IA, USA;1. North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK;2. Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK;3. Aston Research Centre for Healthy Ageing, Aston University, Birmingham, UK;4. Genomics England, Queen Mary University of London, Dawson Hall, London, UK;5. Counselling, Society and Ethics Research, Wellcome Genome Campus, Hinxton, Cambridge, UK;6. Faculty of Health and Wellbeing, Sheffield Hallam University, Howard Street, Sheffield, UK;7. Genetic Alliance UK, London, UK;8. Unique – The Rare Chromosome Disorder Support Group, Oxted, UK;9. Early Disease Detection Research Project UK (EDDRP UK), London, UK;10. Department of Behavioural Science and Health, University College London, London, UK;11. PHG Foundation, Cambridge, UK;12. Population, Policy and Practice, UCL Great Ormond Street Institute of Child Health, London, UK
Abstract:
Keywords:In-depth interviews  Participant observation  Interpretive qualitative study  Shared decision making  Adolescents  Brachial plexus
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