Development,validation and evaluation of a patient information booklet for rectal cancer survivors with a stoma: A three-step approach |
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| Affiliation: | 1. Department of Surgical Oncology, University of Groningen, Groningen, the Netherlands;2. Department of Gastrointestinal Oncology, University of Groningen, Groningen, the Netherlands;1. Dept. of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA;2. Emerita, Northeastern University, Boston, MA, USA;1. Meyers Primary Care Institute, United States;2. University of Massachusetts Medical School, United States;3. National Board of Medical Examiners, United States;4. College of Human Medicine, Michigan State University, United States;5. Department of Family Medicine, Rutgers, Robert Wood Johnson Medical School, United States;6. Department of Medicine, University of Washington, United States;1. School of Health Sciences, Wuhan University, Wuhan, China;2. Global Health of Project HOPE, MD, USA;1. Clarunis, Department of Visceral Surgery, University Centre for Gastrointestinal and Liver Diseases, University Hospital Basel, Basel, Switzerland;2. Department Clinical Ethics, University Basel University Hospital Basel, University of Basel, Basel, Switzerland;1. National Institute of Physical Education of Catalonia (INEFC), Campus Lleida, Catalonia, Spain;2. Complex systems and sport research group, Spain;1. Population and Behavioural Science Division, School of Medicine, University of St Andrews, UK;2. Health Ethics and Policy Lab, Department of Health Sciences and Technology, ETH Zurich, Zurich, Switzerland |
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| Abstract: | ObjectiveQuantitatively measure the degree of patient satisfaction and perceived acquired knowledge through the development of a patient information booklet for rectal cancer survivors with a stoma, according to a novel three-step approach.MethodsThe study included a systematic literature review to identify relevant information for the booklet, which was validated by experts based on relevance, clarity and essentiality. It underwent testing on quality, readability, and layout and design and was quantitatively evaluated by rectal cancer survivors with a stoma.ResultsIn total, 145 articles were used for the development of the booklet. It scored 91% for relevance according to 17 experts, 70% for readability, 75.63% for quality and 23 out of 32 for design. The mean score of patient satisfaction was 8.03 out of 10. All 20 patients found the booklet ‘useful’ and 95% felt better informed.ConclusionsThe booklet scored high for patient satisfaction and increased perceived acquired information. It ensured satisfactory levels of quality, readability, and layout and design.Practice implicationsThis study offers a novel three-step approach for development of informational tools for cancer survivors, assuring that a variety of newly created written patient materials would be of increased quality and relevance to any target population. |
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| Keywords: | Rectal cancer Cancer survivorship Stoma Patient information Patient satisfaction Three-step approach |
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