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Parental perceptions of disease‐severity and health‐related quality of life in school‐age children with congenital heart disease
Authors:Kristine M. Ruggiero PhD  MSN   RN  CPNP‐BC  Patricia A. Hickey PhD  MBA   RN  NEA‐BC  FAAN  Robin R. Leger PhD  MS   BSN  RN  Judith A. Vessey PhD  MBA   RN  DPNP   FAAN  Laura L. Hayman PhD  RN   FAAN  FAHA
Affiliation:1. Pediatric Nurse Practitioner/ Nurse Scientist, Medical ServicesBoston Children's Hospital, Boston, MA, USA;2. Assistant professor, Department of Nursing, MGH Institute of Health Professions, Boston, MA, USA;3. Vice President;4. Associate Cheif Nurse, Cardiovascular and Critical Care Services, Boston Children's Hospital, Boston, MA, USA;5. Professor, Department of Nursing, Salem State University, Salem, MA, USA;6. Nurse Scientist, Medical Services, Boston Children's Hospital, Boston, MA, USA;7. Professor, Department of Nursing, Boston College, Boston, MA, USA;8. Professor, Department of of Nursing, University of Massachusetts Boston, Boston, MA, USA
Abstract:
Keywords:care coordination  children with chronic illness  congenital heart disease (CHD)  disease‐severity  family‐centered care  health‐related quality of life (HRQOL)  health status  parent‐proxy report  pediatric  Pediatric Quality of Life Inventory Scale (PedsQL)
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