Interrelationships among variables affecting well siblings and mothers in families of children with a chronic illness or disability |
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| Authors: | Williams Phoebe Dauz Williams Arthur R Graff J Carolyn Hanson Sandra Stanton Anne Hafeman Carol Liebergen Adrienne Leuenberg Karla Setter Robyn Karlin Ridder Lavonne Curry Heather Barnard Martha Sanders Susan |
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| Affiliation: | (1) University of Kansas School of Nursing, 3901 Rainbow Building, Kansas City, Kansas, 66160;(2) Missouri Association for Social Welfare (MASW), USA;(3) Chair, Division of Health Care Policy & Research, Department of Health Sciences Research, Mayo Clinic, Rochester, Minnesota;(4) University of Kansas Medical Center (KUMC), USA;(5) CNS, Spina Bifida Clinic, USA;(6) Child Development Unit, USA;(7) CNS, Cystic Fibrosis Clinic, USA;(8) USA;(9) USA |
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| Abstract: | A structural equation model (SEM) examined interrelationships among psychosocial variables known to affect the health and development of well siblings and parents when a child with a chronic illness or disability is a member of the family. Using dyads of 252 well children and parents, socioeconomic status (SES) and family cohesion were associated with the parent-reported behavior of the well sibling. SES also influenced the mood of the mother that in turn influenced family cohesion. The well sibling's knowledge about the illness of the brother or sister, attitude toward the illness, mood, self-esteem, and feelings of social support were interrelated and related to the behavior of the well sibling. The SEM suggests that interventions may be directed at several points in these interactions including boosting knowledge levels of the well sibling, improving family cohesion, and assuring adequate  income support to the family through income transfers or in-kind services. |
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| Keywords: | pediatric chronic illness or disability cognitive and psychosocial outcomes child development family systems theory structural equation modeling |
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