| Abstract: | Parental perceptions of receiving a diagnosis for their child have been widely researched, with results suggesting high levels of dissatisfaction. Such research has focused upon diagnoses such as Down syndrome and cerebral palsy, and has often looked specifically at the disclosure of a diagnosis. There is limited research looking at the process associated with receiving a diagnosis of an autism spectrum disorder (ASD); that is, from sharing initial concerns to receiving support and intervention. This study aimed to document parents' experiences of the diagnostic process for ASD. A sample of participants was selected, according to set criteria, from an Education and Library Board database in Northern Ireland. Eleven parents agreed to be interviewed at home, using a semi-structured interview schedule, on their experiences of ASD diagnostic procedures. Qualitative responses were analysed using thematic analysis. Data were also presented descriptively. Results suggested that the majority of parents had positive comments about the assessment and diagnostic experience. Parents cited several points as contributing to their overall experience with the process. These included having their initial concerns listened to, receiving their child's diagnosis in person, receiving written information and help in applying this information. This report provides a valuable insight into parental experiences of receiving an ASD diagnosis for their child. Key findings highlight the complexity of the diagnostic process for both practitioners and families involved, and therefore may have implications for practice. This is further discussed in the report. |
