Best practices in the pediatric pretransplant psychosocial evaluation |
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| Authors: | Debra S Lefkowitz Christopher J Fitzgerald Nataliya Zelikovsky Katherine Barlow Jo Wray |
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| Institution: | 1. The Children's Hospital of Philadelphia, , Philadelphia, PA, USA;2. La Salle University, , Philadelphia, PA, USA;3. Freeman Hospital, , Newcastle, UK;4. Critical Care and Cardiorespiratory Division, Great Ormond Street Hospital for Children NHS Foundation Trust, , London, UK |
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| Abstract: | Assessment of psychosocial functioning is an often‐included component of the pretransplant evaluation process. This study reviews several domains of assessment that have been related to post‐transplant outcomes across solid organ transplant populations. These include evaluation of patient and family past adherence, knowledge about the transplantation process, and their neurocognitive, psychological, and family functioning. To date, few comprehensive pretransplant evaluation measures have been standardized for use with children; however, several assessment measures used to evaluate the aforementioned domains are reviewed throughout the study. Additionally, this article discusses some developmental, illness‐specific, and cultural considerations in conducting the psychosocial evaluation. We also discuss ethical issues specific to the pediatric psychosocial evaluation. Recommendations are advanced to promote a comprehensive evaluation that identifies family strengths and risk factors as they begin the transplant journey. |
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| Keywords: | pediatric transplantation psychosocial evaluation |
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