The subjective experience of people with severe mental illness: a potentially crucial piece of the puzzle

Over the last two decades there has been growing interest in the subjective experiences of persons with severe mental illness (SMI). Despite this interest, little research has been carried out to understand whether and how such experiences are related to the course of SMI. In addition, few psychotherapeutic and rehabilitation interventions have been developed especially for persons with SMI that seriously take these persons' subjective experiences into account. In the present paper we discuss why the use and investigation of the subjective experience of people with SMI has been neglected, and we point out the potential importance of this experience. We then review the growing literature that focuses on the subjective experience of (1) the illness, (2) the self, and (3) the self as influenced by the social context of persons with SMI. Finally, the implications of this review for rehabilitation, recovery and research are discussed.