The parent-nurse relationship from the perspective of parents of children with cancer |
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| Institution: | 1. Department of Physical and Analytical Chemistry, University of Oviedo, Julián Clavería 8, 33006 Oviedo, Spain;2. Wigner Research Centre for Physics, Hungarian Academy of Sciences, Konkoly-Thege út 29-33, H-1121 Budapest, Hungary;1. Department of Pediatric Cardiology and Adult Congenital Heart Disease, National Cerebral and Cardiovascular Center, Osaka, Japan;2. Department of Pediatric Cardiology, National Cerebral and Cardiovascular Center, Osaka, Japan;1. Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA 02215;2. Department of Medicine, Brigham and Women''s Hospital, Boston, MA 02115;3. Department of Emergency Medicine, Brigham and Women''s Hospital, Boston, MA 02115;1. Department of Ophthalmology and Visual Sciences, University of Michigan Medical School;2. Department of Internal Medicine, Division of Metabolism, Endocrinology, and Diabetes, University of Michigan Medical School, Ann Arbor, MI;3. University of Michigan Undergraduate Program, Ann Arbor, MI |
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| Abstract: | Research to date has overlooked the specific relationship between parents and nurses, particularly in the context of family-centered care for a hospitalized child with cancer. The purpose of this study was to describe how parents perceive the relationship with the pediatric staff nurse necessitated by the hospitalization of their child with cancer. Using a symbolic interactionist framework and a modified grounded theory methodology, this study explored the parent-nurse relationship when a child with cancer is hospitalized. A purposive, theoretical quota sampling method was used to recruit 16 parents. Both parents' and nurses' care were examined from the parents' perspectives; mothers and fathers were interviewed separately. Analysis of the data led to the development of a substantive theory describing parent care (Making it Better), nursing care (Going Through the Motions, Caring Incompletely and Caring Completely), and the parent-nurse relationship (Working Together). Conditions influencing the care provided by parents and nurses and in turn the parent-nurse relationship were also identified. This research describes strategies nurses use to enhance the family-centered care they provide and reveals the effect nursing care has on parents' hospital experiences. Recommendations are made for nursing research, practice, and education. |
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