儿童和青少年癌症患者终末期真实体验与需求的Meta整合

目的 对儿童和青少年癌症患者终末期真实体验与需求的质性研究结果进行整合，为更好地开展安宁疗护实践提供参考。方法系统检索中英文数据库关于儿童和青少年癌症患者终末期真实体验与需求的质性研究，检索时限从建库至2023年4月1日。采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准进行文献质量评价，采用汇集整合法进行Meta整合。结果共纳入8篇研究，质量等级均为B级。提炼出40个研究结果，将相似结果归纳组合形成 7个新的类别，并整合为3个结果：遭受身心痛苦体验；积极应对疾病，经历正面心理体验及自身成长；对正常生活的渴望，希望得到社会支持。结论儿童和青少年癌症患者终末期经历消极和积极体验，其需求有年龄差异性。医护人员需重视儿童和青少年癌症患者终末期体验和需求，提供心理疏导和必要支持，提升其终末期生活质量。

Lived experience and needs of children and adolescents in the terminal stage of cancer:a meta synthesis of qualitative research

Objective To integrate the qualitative research findings on the lived experience and needs of children and adolescents with cancer in the terminal stage of their lives, and to provide reference for better palliative care practices. MethodsA systematic search of both international and domestic data sources was conducted for qualitative studies on the experiences and needs of children and adolescents with cancer in the terminal stage of their lives, from the inception of each database until 1 April 2023. The Joanna Briggs Institute (JBI) critical appraisal checklist for qualitative research was used to evaluate the methodological quality of the included literature. Then a meta aggregation methodology was used to synthesize thequalitative studies.ResultsEight studies met eligibility criteria, all of which were rated as B quality. From these studies, 40 study findings were extracted and categorized into seven new categories. Then three main themes were identified: children and adolescents with cancer suffer from physical and psychological distress in the terminal stage; they actively cope with the disease, and experience positive psychological changes and personal growth; and they desire for a normal life and social support. ConclusionChildren and adolescents with cancer undergo both negative and positive experiences in the terminal stage of life, and their needs show age related differences. Healthcare professionals need to pay attention to the experiences and needs of these patients during the terminal stage, and provide psychological counseling and necessary support to improve their quality of life during this challenging period.