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Health Literacy and Heart Failure Management in Patient-Caregiver Dyads
Institution:1. Department of Psychiatry, Case Western Reserve University School of Medicine, Cleveland, Ohio;2. Neurological and Behavioral Outcomes Center, University Hospitals Health System, Cleveland, Ohio;3. Denver Health Medical Center, Denver, Colorado;4. University of Colorado Anschutz Medical Campus, Aurora, Colorado;5. Case Western Reserve University Frances Payne Bolton School of Nursing, Cleveland, Ohio;1. Hospital Medicine Section, Denver VA Medical Center, Denver, Colorado;2. Division of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Denver, Colorado;3. College of Nursing, University of Colorado, Denver, Colorado;4. Cardiology Section, Denver VA Medical Center, Denver, Colorado;5. Department of Medicine, University of Colorado School of Medicine, Denver, Colorado;6. Research and Geriatrics Sections, Denver VA Medical Center, Denver, Colorado;1. Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia;2. Cardiovascular Center, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts;1. Office of Clinical Practice Innovation, George Washington University School of Medicine and Health Sciences, Washington, DC;2. Center for Cardiovascular Innovation, Northwestern University Feinberg School of Medicine, Chicago, IL;3. Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL;4. Department of Medicine, Division of Hospital Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL;5. Department of Surgery, Division of Cardiac Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL;6. Northwestern Memorial Hospital, Chicago, IL;7. Department of Occupational Therapy, University of Illinois at Chicago;8. Wake Forest School of Medicine, Winston-Salem, NC;1. McMaster University, Hamilton, Ontario, Canada;2. Institute for Applied Health Research, School of Health & Life Sciences, Glasgow Caledonian University, Glasgow, Scotland, United Kingdom;3. McMaster University, Heart Function Clinic, Hamilton Health Sciences, Hamilton, Ontario, Canada;4. University of Alberta, Faculty of Nursing, Edmonton, Alberta, Canada;1. Departamento de Medicina Preventiva y Salud Pública, Facultad de Medicina, Universidad Autónoma de Madrid/Idipaz, CIBERESP and IMDEA-Food Institute, CEI UAM+CSIC, Madrid, Spain;2. Servicio de Cardiología, Complejo Hospitalario Universitario de Vigo, Vigo, Pontevedra, Spain;3. Servicio de Geriatría, Complejo Hospitalario Universitario de Vigo, Vigo, Pontevedra, Spain;4. Servicio de Geriatría, Complejo Hospitalario de Cáceres, Cáceres, Spain;5. Servicio de Geriatría, Hospital Universitario de Guadalajara, Universidad de Alcalá de Henares, Guadalajara, Spain;6. Servicio de Geriatría, Hospital Universitario La Paz, IdiPaz, Universidad Autónoma de Madrid, Madrid, Spain;7. Servicio de Geriatría, Complejo Hospitalario de Albacete, Albacete, Spain;8. Servicio de Geriatría, Complejo Hospitalario de Oviedo, Departamento de Medicina, Universidad de Oviedo, Oviedo, Asturias, Spain;9. Department of Care of the Elderly, Lincoln County Hospital, Lincoln, Lincolnshire, United Kingdom;10. University of Lincoln, Lincoln County Hospital, Lincoln, Lincolnshire, United Kingdom;1. University of Kansas Medical Center, School of Nursing, 3901 Rainbow Boulevard, Mail Stop 4043, Kansas City, KS 66160-7502, USA;2. University of Kansas Medical Center, Department of Biostatistics, USA;3. University of Kansas Hospital, Mid America Cardiology, USA;4. University of Kansas Medical Center, School of Nursing, Preventive Medicine and Public Health, USA
Abstract:BackgroundOlder adults with heart failure (HF) often need caregivers to assist with care, yet little is known about the health literacy of both patients and their caregivers. The objective of this study was to assess health literacy and the relationship between health literacy and HF self-care in HF patient-caregiver dyads.Methods and ResultsSeventeen patient-caregiver dyads were recruited. Dyads completed a measure of HF self-care and 2 measures of health literacy: 3 validated questions and a nutrition label reading task. Patients were older than caregivers and the majority of both patients and caregivers were female. Caregivers had higher health literacy by both the health literacy questions (P = .001) and label-reading measure (P = .001). All caregivers had adequate health literacy as assessed by the 3 questions, but 29% had inadequate health literacy according to the label-reading task. Caregivers and patients scored adequately in HF maintenance but inadequately in management and confidence domains.ConclusionsCaregivers had better health literacy than patients; however, the task-oriented label-reading measure revealed poorer health literacy than the self-report measure. Measures of health literacy that reflect day to day tasks may be more illuminating than the 3 questions.
Keywords:Self-care  label reading task
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