Improving knowledge and decision readiness to participate in cancer clinical trials: Effects of a plain language decision aid for minority cancer survivors |
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| Authors: | Aisha Langford Jamie L. Studts Margaret M Byrne |
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| Affiliation: | 1. New York University Grossman School of Medicine, Department of Population Health, New York, NY 10016, United States;2. Division of Medical Oncology, Department of Medicine, University of Colorado School of Medicine, Aurora, CO 80045, United States;3. Cancer Prevention and Control Program, University of Colorado Cancer Center, Aurora, CO 80045, United States;4. Department of Health Outcomes and Behavior, Moffitt Cancer Center, Tampa FL 33612, United States;1. Department of Neurosurgery, The Royal Melbourne Hospital, Parkville, Australia;2. Department of Surgery, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Parkville, Australia;1. Biomedical Ethics Research Program, Mayo Clinic, Rochester, USA;2. Biomedical Ethics Research Program, Mayo Clinic, Rochester, USA;3. Davidson College, Davidson, USA;4. Biomedical Ethics Research Program, Mayo Clinic, Rochester, USA;5. Biomedical Ethics Research Program, Mayo Clinic, Rochester, USA;6. Geisel School of Medicine, Dartmouth College, Hanover, USA;7. Biomedical Ethics Research Program, Mayo Clinic, Rochester, USA;1. Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA;2. College of Journalism and Communications, University of Florida, Gainesville, FL, USA;3. College of Medicine, University of Florida, Gainesville, FL, USA;4. Department of Psychology, University of Arizona, Tucson, AZ, USA;5. Weill Cornell Medical College, New York, NY, USA;1. Health, Medical and Neuropsychology Unit, Leiden University, Leiden, Netherlands;2. Leiden Institute for Brain and Cognition (LIBC), Leiden, Netherlands;3. Oncology Center, Leiden University Medical Center, Leiden, Netherlands;4. Department of Psychiatry, Leiden University Medical Center, Leiden, Netherlands;1. Hebrew University Hadaasah, Faculty of Medicine. Jerusalem, Israel;2. Clinical Psychologist Haifa University, Israel |
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| Abstract: | ObjectiveTo evaluate the impact of a web-based, plain language decision aid (CHOICES DA) on minority cancer survivors’ knowledge of cancer clinical trials (CCTs), readiness for making decisions about clinical trial participation, and willingness to participate in a clinical trial.MethodsParticipants were 64 Black and Hispanic cancer survivors from Miami, Florida. In a single arm intervention study, participants completed self-report assessments of CCT knowledge, decision readiness regarding clinical trial participation, and willingness to participate at three time points.ResultsBlack and Hispanic participants did not differ on demographic characteristics. Post-test and follow-up measures of CCT knowledge and decision readiness were significantly greater than pre-test measures for the sample overall, and for Black and Hispanic participants separately. Few significant differences were observed between Black and Hispanic participant outcomes at each survey time point, and willingness to participate did not change overall and for either group independently.ConclusionsReviewing the CHOICES DA was associated with significantly improved knowledge and decision readiness to participate in a CCT immediately and at 2-week follow-up.Practical ImplicationsThese findings suggest that CHOICES DA may support informed decision making about CCT participation within an acute, yet clinically relevant window of time for minority cancer patients who are substantially under-represented in cancer research. |
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| Keywords: | Patient decision making Decision aids Cancer clinical trials Minorities |
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