Educational Priorities for Individuals with Angelman Syndrome: A Study of Parents’ Perspectives |
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Authors: | Maartje Radstaake Robert Didden Nienke Peters-Scheffer Jeff Sigafoos Hubert Korzilius Leopold M G Curfs |
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Institution: | 1. Department of Special Education, Radboud University Nijmegen, Nijmegen, The Netherlands 5. Child & Youth, Daelzicht, Heel, The Netherlands 6. Trajectum, Zwolle, The Netherlands 7. Driestroom, Elst, The Netherlands 2. Department of Educational Psychology, Victoria University of Wellington, Wellington, New-Zealand 3. Department of Research Methodology, Radboud University, Nijmegen, The Netherlands 4. Department of Clinical Genetics, Maastricht University Medical Centre and Govenor Kremers Centre, Maastricht, The Netherlands
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Abstract: | The priorities of parents of children with intellectual disability should be considered when selecting educational goals. To this end, 77 parents of children with Angelman syndrome (AS) completed a questionnaire that involved rating their child’s abilities and prioritizing educational goals across a range of adaptive and maladaptive domains. A factor analysis was used to determine if parents prioritized the training of skills in which their child showed a major, moderate or minor deficit. Results suggest that skills related to communication, recreation, self-care, motor and academic domains are high priorities. Further, parents of children under the age of 18 indicated that communication skills were a high priority, whereas parents of adults also prioritized daytime activity skills (e.g., swimming and cycling). Training for communication, recreational and ingestion skills was prioritized when children showed emerging skills; training for motor skills was prioritized when children were highly dependent; and training for self-care skills was prioritized when children were more independent in the self-care domain. In terms of behavioral problems, sleep and eating problems were prioritized. |
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